Increase text size:

What is public involvement in clinical research?

Public involvement in clinical research is what happens when members of the public get actively involved in research, such as helping to decide what is researched, how the research should be carried out and what should be done afterwards.

Many people describe public involvement in research as research that is done with or by the public and not ‘to’, ‘about’ or ‘for’ them. This active involvement is different to being a participant in clinical research such as taking part in a clinical trial. A growing number of organisations have opportunities for public involvement in their research activities. For example, they could be looking for people with personal knowledge of an illness that they want to research or for members of the public with some previous experience of involvement in research.

Man in Puzzle piece
INVOLVE website

Visit INVOLVE for further information on public involvement in research.

What people say

Read about people’s experiences of involvement

Jargon buster

Gives definitions of some of the words that are used on this site.  Words that are in bold and are underlined link to our Jargon buster.