Join the PALOH-UK Parent Advisory Group today!
Has your child been in neonatal care OR have hearing loss from antibiotic toxicity? Join our PAG!
Link to organisation:
Full description:
A new genetic test has now been implemented across fourteen NHS hospitals to predict which babies are at risk of hearing loss due to side effects of antibiotics.
PALOH-UK is a research study that is evaluating this genetic test and will help decide how the genetic test is used across the UK.
Join our Parent Advisory Group to shape this research study, influence decision-making and make a difference that will shape clinical care in NICU in the future.
Opportunity Deadline
18th September 2025
Payment:
Payments will be made at the rate of £25 an hour to everyone who is actively involved in shaping this work.
Expenses:
For online meetings / activities, a £5 remote working allowance will be offered. Where meetings are in-person, reasonable travel expenses will be reimbursed.
Organisation
PALOH-UK
A new genetic test has now been implemented across fourteen NHS hospitals to predict which babies are at risk of hearing loss due to side effects of antibiotics. The test will use genetic information to enable doctors to prescribe the right type of antibiotic to the right baby at the right time.
PALOH-UK is working to evaluate how well this genetic test works and how well it is implemented into routine care.
Attachment
Poster (in English) - Parent Advisory Group Recruitment - PALOH-UK - August 2025.pdf
Details
Topic:
All of health care
Children and young people
Location:
UK wide
Involvement type:
All of research
What support is offered?
We want to ensure everyone is supported to get involved. You'll be joining other parents with similar experiences where we'll form an informal peer support network. You’ll also have a key contact who will provide you with information, updates and can answer any questions you might have. We also want to hear from you about anything else we can do to help – this could be for you personally or for the group.
Can the work be done from home?
Yes
Suitable for a beginner?
Yes
