Patient/Carer Advisory Group – Study to Prevent Blood Clots in Mental Health Hospitals
Link to organisation:
Full description:
MARVEL-MH – Reducing the risk of hospital-associated blood clots in people admitted to mental health hospitals
When people are admitted to hospital with mental illness, they may be at risk of developing blood clots (also known as venous thromboembolism). We want to better understand this risk and explore how it can be reduced.
We are forming a Patient and Carer Advisory Group to help shape this research.
The group will meet four times over 18 months via MS Teams (each meeting will last one hour, with around one hour of preparation).
This group is essential to our study. We want to ensure that the research reflects what matters most to patients and carers.
The advisory group will help with:
– Planning visits to mental health hospitals
– Designing interview questions for healthcare professionals, patients and carers
– Reviewing study materials and findings before they are shared with patients, conferences and scientific journals.
Who we are looking for:
We are looking for individuals living with mental health conditions who have experience of being admitted to a mental health hospital or have cared for someone who has been admitted to hospital. It would be really good to meet individuals who have also experienced having a blood clot, but this is not essential. We welcome people from all backgrounds and communities.
How you would be involved:
The advisory group will meet on four occasions over the 18-month study via MS Teams, and be reimbursed for all
meetings.
The group will support the:
– Planning of visits to mental health hospitals
– Designing interview topic guides for health care professionals and patients and carers
– Review any study dissemination material for patients, conferences and scientific journals.
How will your involvement contribute:
Having patient/carer involvement will mean we can plan and deliver our research to capture what matters the most for patients and to really understand how best to communicate our findings.
Time commitment:
Approximately 8 hours over 18 months (4 x 1-hour meetings plus 1 hour preparation per meeting).
What to expect after applying:
After applying, the lead investigator for the study will contact the applicant for an informal chat to see whether they would like to go ahead.
Opportunity Deadline
3rd April 2026
Payment:
£50 per meeting (this includes 1 hour meeting attendance and 1 hour preparation time). Total payment available: £200. Payments will be made in line with NIHR guidance.
Expenses:
Internet use (£5 each) and allowing for childcare (£8)/caring (£25) As per NIHR guidance
Organisation
King’s College Hospital – Thrombosis Team
We are a specialist team at King’s College Hospital that specialise in the treatment and prevention of blood clots. We carry out lots of research in this area to help answer the questions that come up every day in clinic practice. For this research we are collaborating with co-investigators from South London and the Maudsley, The Bennett Institute at Oxford University, and King’s College London.
Attachment
Details
Topic:
Mental health
Other
Location:
UK wide
Involvement type:
All of research
What support is offered?
The first meeting will be an introduction to the study and an opportunity to discuss further training if felt needed.
Can the work be done from home?
Yes
Suitable for a beginner?
Yes
