Opportunity details

Lay review of clinical trial for Fragile X Syndrome

We’re looking for 3 people with lived experience of Fragile X Syndrome to review an application

Link to organisation:

www.lifearc.org

Full description:

We are looking for 3 people with lived experience of Fragile X Syndrome to review the lay summary of the research project. We would like to get feedback on the proposed approach to the trial and better understand the potential impact for patients and families.

PPI reviewers will be sent a lay summary (up to 1300 words) which has been completed by the research team. Reviewers will be asked to complete a written review form to share their feedback on key areas of the project.

Opportunity Deadline

3rd September 2026

Payment:

Contributors will be reimbursed for their time (see role description)

Expenses:

Reasonable costs covered

Organisation

LifeArc

LifeArc is a medical research charity focused on research in rare diseases and global health. Last year, we launched the Rare Disease Clinical Trials Programme. The programme supports researchers in universities and small companies to conduct early-stage clinical trials, with the aim of progressing treatments for rare diseases.

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