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Patient & public engagement - Seeking spouse and partners caring for someone living with dementia

Our research aims to develop and improve a measure of death literacy. “Death literacy” means understanding what happens at the end of life, knowing what support is available, and being able to make good decisions about care. Carers who have better death literacy may feel more confident, provide better care, and find it easier to get the help they need. We are seeking current spouse/partners who are providing informal carers to participate in a 2-year project involving four meetings. Informal means that you are not a paid member of staff, but either a family member or close friend/relative.