Join a new online patient and public involvement group to help design research on incidental findings found through genetic testing. An incidental finding is something found during a medical test that is unrelated to the original reason the test was requested. I’m seeking people with experience of medical genetic testing, incidental findings, and people with no prior experience of either. The group will meet at least twice. Please see the attached flyer for more information.

Researchers at The Christie NHS Foundation Trust are looking to speak with people who have experience of primary liver cancer (ideally hepatocellular carcinoma, often called HCC), either as a patient or a carer.

The research is exploring ways to identify healthy liver tissue so that radiotherapy treatment can be planned more accurately.

The session will take place in the centre of Manchester.

We know that people living with severe mental health conditions may face extra challenges during very hot weather. This project aims to understand why so services and communities can respond better.

I am forming a small advisory group to help the research team guide the project and be involved in making practical guides and recommendations.

If you are interested, please express interest through link in document attached.

We are a research team based at Imperial College London looking for a small group of public members to help us with an important research project on antimicrobial resistance (when antibiotics stop working as well because of overuse or misuse) focussing on sepsis. We would especially like to hear from people from minority ethnic backgrounds who are under represented in our group so far.

We are looking for UK residents aged 60+ who read English to complete a survey for a Doctoral Thesis.
We are exploring the links between childhood trauma, loneliness, being afraid of giving or receiving compassion and depression in older adults. Understanding these connections more clearly will help find better ways to provide support. No lived experience is needed to participate.
To participate, copy and paste this link: https://edinburgh.eu.qualtrics.com/jfe/form/SV_e51cgtMuGxAfRn8

We are looking to hear from people from across the country to design a prehabilitation program to support people who are waiting to have surgery on their neck/back for age-related conditions. This may limit how far people can walk because of pain, numbness or balance problems. We want to hear from you about how we can deliver it in practice in a way that keeps it accessible and useful to you. If you have had spinal surgery or awaiting spinal surgery please get in touch.

I am recruiting a 6 person steering group to guide a 5-year NIHR-funded research programme on maximising dementia-free years and minimising the time spent with disability. The research will include developing new methods, analysing data, understanding patient and carer experience of dementia, and communicating findings to policy/the public. The group will meet 6 monthly in-person/virtually/hybrid to be determined by the group.

Inclusion criteria:
Adults (18+) with long-term expressive (Broca’s) aphasia, with unimpaired language comprehension and cognition, use English as their main language and have had aphasia for more than 6 months.

Participation involves:
• Providing some language samples from before aphasia (optional formats include written or recorded).
• Taking part in one online session (approximately 45–60 minutes via Microsoft Teams).
• Receiving a £10 Amazon voucher as compensation for your time.

We are looking for parents/carers from all backgrounds across the UK to help shape research about feeding babies receiving Nasal High Flow breathing support in neonatal units. Join our Patient Public Involvement and Engagement (PPIE) group to share your experiences and views, helping ensure the research reflects what matters most to families.

Activities include:
– Online discussions (around four a year)
– Reviewing research materials
– Helping share results with families and professionals

Are you: Autistic?, Aged 18 or over?, Willing to complete an online survey?, Able to join a call online?

About the research: We are exploring how autistic people (with and without a diagnosis) experience and imagine different sounds

What’s involved?: Join an online call and complete an online survey (approximately 15–30 minutes)