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Opportunity details

Get Involved in a research about MRI and Gait Analysis in CMT

For people living with CMT, this is an opportunity to review a participants' information sheet

Link to organisation:

https://www.ucl.ac.uk/centre-for-neuromuscular-diseases/

Full description:

The study will seek to explore how people with dHMN (a type of CMT 2) walk and how physical therapy can help. We aim to investigate this through a series of clinical examinations and rehabilitation treatments, for example, ankle braces and exercises.

If you are living with any type of CMT, you are invited to review the participants' information sheet for this research.
You do not need any previous experience, just the willingness to give your perspective as someone with experience of CMT.

Date from

27th May 2020

Date to

27th July 2020

Organisation

UCL, Queen Square Centre for Neuromuscular Diseases, London

The mission of the MRC centre is to translate science into therapies for children and adults with muscle wasting neuromuscular diseases.
The MRC Centre is an interdisciplinary collaboration of 35 senior clinical and basic scientists from UCL and Newcastle University.

Attachment

MRI and Gait in dHMN_PIS - patient.docx


Details

Topic:

All of health care
Neurological disorders

Location:

UK wide
London

Involvement type:

All of research
Reviewing

What support is offered?

NA

Payment:

None

Expenses:

None

Can the work be done from home?

Yes

Suitable for a beginner?

Yes