Opportunity details

Help us shape 'big data' research to benefit people with liver disease

Seeking patients & the public with experience of liver disease to shape health record data research

Link to organisation:

Full description:

Liver disease is a growing problem & a major cause of death in young adults. We want to use data from national health records to find clues about who is likely to develop severe liver damage (cirrhosis). We want to hear from people with lived experience of liver disease to help us develop our research questions. We also want to know your thoughts about using patient health record data for research.

Your involvement will be either/both:
1. Online questionnaire
2. Online focus group (max 60 mins)

Date from

24th November 2022

Date to

10th January 2023



My name is Dominic Crocombe and I am an Academic Clinical Fellow at University College London Institute of Liver and Digestive Health.

With Prof Alastair O'Brien and Prof Harry Hemingway, we are exploring how to make research into liver disease using big data from electronic health records as safe, relevant and beneficial as possible for patients and the public who are affected by liver disease.


Liver disease big data research - PPI information.pdf



Digestive system
Health services and health delivery
Primary care
Public health
Stroke or cardiovascular disease


UK wide

Involvement type:

Identifying and prioritising
Designing and managing

What support is offered?

Additional support with completing the online questionnaire can be provided where necessary


£25 for 60 minute online focus group


No travel required

Can the work be done from home?


Suitable for a beginner?


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