Opportunity details

Identifying rare genetic diseases – patient/public advisors needed for PhD research

Experience or interest: rare genetic diseases, diagnosis, or genetic testing?

Link to organisation:

Full description:

We are researching how to improve identifying rare genetic diseases in the UK.

We are looking for anyone who has experience or is interested in: rare genetic disease diagnosis, genetic testing, disease risk prediction.
*especially if you are a man who received a diagnosis for a monogenic disease in adulthood*

Through 2-3 online discussions, you will shape and give feedback on PhD research as a ‘lay advisor’.

Date from

1st June 2021

Date to

31st August 2021

Organisation

UCL

Primary Care and Population Health
Institute of Epidemiology and Health Care

Attachment

PPI advert for PhD research - Identifying rare genetic diseases.pdfPPI advert for PhD research - Identifying rare genetic diseases.pdf


Details

Topic:

All of health care
Health services and health delivery
Primary care
Public health
Other

Location:

UK wide

Involvement type:

All of research
Identifying and prioritising
Evaluating impact
Reviewing

What support is offered?

Please email the researcher to discuss how we can best support you and to get any additional information. You will not need any specialist knowledge, but some knowledge/experience/opinions on any of the topics to be discussed.

Payment:

Yes - in the form of vouchers, if you would like them

Expenses:

No - all meetings will be held online

Can the work be done from home?

Yes

Suitable for a beginner?

Yes


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