Join MRC NIHR UK Rare Disease Research Platform Selection Panel
Patient representatives invited to join selection panel for proposals for rare disease research
Link to organisation:
Full description:
The Platform will coordinate rare disease research and address tractable challenges. Up to twelve, thematic research nodes will be funded.
Representatives on the selection panel should ideally have lived experience of a rare condition, an interest in research, be able to broadly represent the shared interests of the rare disease community and provide feedback on the public and patient involvement sections of the applications
Date from
20th January 2023
Date to
20th February 2023
Organisation
National Institute of Health and Care Research (NIHR)
The National Institute of Health and Care Research funds, enables and delivers world-leading health and social care research that improves people's health and wellbeing and promotes economic growth.
We are funded by the Department of Health and Social Care. Our work focuses on early translational research, clinical research and applied health and social care research.
Attachment
220501 PPIE long description for platform V2
Details
Topic:
All of health care
Location:
UK wide
Involvement type:
Commissioning
What support is offered?
It is useful, but not essential for applicants to have experience of research or clinical trials. An induction call to the MRC NIHR Rare Disease Research Platform and their role on the Selection Panel will be provided. Members will be able to contact the team by e-mail with any queries.
Payment:
£300 for the two days of expert panel meeting
Expenses:
Reasonable expenses reimbursed
Can the work be done from home?
Yes
Suitable for a beginner?
No
