Opportunity details

Join MRC NIHR UK Rare Disease Research Platform Selection Panel

Patient representatives invited to join selection panel for proposals for rare disease research

Link to organisation:

Full description:

The Platform will coordinate rare disease research and address tractable challenges. Up to twelve, thematic research nodes will be funded.

Representatives on the selection panel should ideally have lived experience of a rare condition, an interest in research, be able to broadly represent the shared interests of the rare disease community and provide feedback on the public and patient involvement sections of the applications

Date from

20th January 2023

Date to

20th February 2023


National Institute of Health and Care Research (NIHR)

The National Institute of Health and Care Research funds, enables and delivers world-leading health and social care research that improves people's health and wellbeing and promotes economic growth.
We are funded by the Department of Health and Social Care. Our work focuses on early translational research, clinical research and applied health and social care research.


220501 PPIE long description for platform V2



All of health care


UK wide

Involvement type:


What support is offered?

It is useful, but not essential for applicants to have experience of research or clinical trials. An induction call to the MRC NIHR Rare Disease Research Platform and their role on the Selection Panel will be provided. Members will be able to contact the team by e-mail with any queries.


£300 for the two days of expert panel meeting


Reasonable expenses reimbursed

Can the work be done from home?


Suitable for a beginner?


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