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Opportunity details

Opportunity for parents and children to join patient advisory group for ‘TREAT paediatric severe asthma trial’

Exciting programme (Imperial) may lead to new treatments available for children with severe asthma

Link to organisation:

https://www.asthma.org.uk/research/funding/get-involved/

Full description:

Recruiting parents and children with asthma (primarily difficult/severe) aged 6-16 yrs to join a Patient Advisory Panel to ensure research is relevant to children and addresses key unmet needs. Parents can also join the Trial Management Group. You must register as Asthma UK volunteers to be involved, but don't need to commit to the full 5 years (can step down anytime). Quarterly teleconferences and one yearly meeting in London. See attachment/contact Caroline for more info.

Date from

18th November 2019

Date to

18th February 2020

Organisation

Asthma UK

Asthma UK is the charity dedicated to improving the health and well-being of the 5.4 million people in the UK whose lives are affected by asthma, which includes the commitment to improve asthma diagnostics and the quality of routine asthma care. We work together with people with asthma, healthcare professionals, researchers and innovators to develop and share expertise to help people increase their understanding and reduce the effect of asthma on their lives.

Attachment

Terms of Reference - Asthma UK Patient Involvement - TREAT Trial.pdf


Details

Topic:

Children and young people
Respiratory disorders

Location:

UK wide
London

Involvement type:

All of research

What support is offered?

Asthma UK will be on hand to support volunteers as and when needed.

Payment:

The project has allocated a small yearly honorarium for parents in recognition of their contribution.

Expenses:

Travel and other eligible expenses will be reimbursed in line with Asthma UK’s expense policy.

Can the work be done from home?

Yes

Suitable for a beginner?

Yes