Workshops for patients affected by genetic conditions and their carers to develop a patient portal.
Sano Genetics, Genomics England, and Zetta Genomics are holding two workshops, with full support for remote attendance.
This project is funded by an innovateUK grant, and will help patients to provide more information about their experiences to research in rare and chronic genetic conditions. Collecting information about health and wellbeing directly from patients can help fill in the blanks between infrequent doctor visits, to the benefit of patients and researchers.
16th March 2020
16th April 2020
Sano Genetics is a startup company based in Cambridge, UK that is building software to better connect patients and researchers. Sano is collaborating with Genomics England and Zetta Genomics to create a new software platform that allows participants in genetics research to better add data about their experiences and connect with new research opportunities.
All of health care
Children and young people
Identifying and prioritising
Designing and managing
This research will provide a great opportunity to meet other patients / carers interested in the future of patient-centric research. The Sano, Genomics England, and Zetta team will support participants through the workshop and be available before or after to update on the progress of the project.