We want to learn from people who have had experience with planning medical care, making treatment decisions, or coordinating support after a fracture. Your perspective will help shape future healthcare services and research areas.
We are looking for individuals with lived experience in:
• Making or supporting medical decisions after breaking a bone
• Coordinating ongoing care or support at home or in the community
• Involvement in planning care services following injury

Clinical trials aim to find out more about an illness, condition, treatment, therapy or care. The type of clinical trials we are discussing in this work involve medicines routinely used in the NHS which have therefore undergone all necessary safety evaluations required for use in the UK.
We are developing principles on simplified arrangements for consent to support these important clinical trials on existing medicines, while maintaining public trust.

We are looking for a parent or carer of a child who has undergone a laparotomy to review a application looking at postoperative pain relief. The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It will be available to review from 18 September and the review would ideally be completed within 2 weeks. If you are interested, please send details of your experience.

Join our friendly workshop of 10-12 people in central Manchester this September to share your views on a new UV light device designed to prevent catheter-related infections and reduce changes.

We want to hear from people with personal or family experience of needing catheters or central lines in hospital or at home.

We’ll explore how the tool fits into people’s needs and care and how to design a trial to test how well it achieves this in real life.

Resistant hypertension is blood pressure that stays high despite taking three or more medicines, including a diuretic. It raises the risk of heart attack, stroke, and kidney disease. This study will use NHS records and genetic data to see how common it is, understand its causes, and find existing medicines that could help. A Patient and Public Involvement group will guide the research, making sure it reflects patient needs and produces clear, useful results.

We are developing a new chat-bot style tool which gives advice and signposting for families with a neurodivergent child and/or a child on the waiting list for assessment.

We’re looking for up to 10 people to join our Lived Experience Group to help shape the tool through its development phases to make sure it provides the best support for families.

The group will be running from September 2025 to April 2026 online. There will be a mix of focus groups, workshops and surveys.

We are looking for people aged 18 and over. We would like to hear from you if:

– You are living with a life-limiting illness and have experience of being cared for by a Virtual Ward or Hospital at Home Service

or

– You have experience of looking after a loved one living with a life-limiting illness who received or is receiving care from a Virtual Ward or Hospital at Home Service

Please check some of our documents, such as our survey and interview questions, then tell us your views on them.

Round 3 of our Delphi survey is now open! We’re asking patients, the public, and researchers to help us agree on the most essential information to include when sharing randomised trial results.

This is the final round – just 11 short items to rate.

Your voice can help improve how results are shared in the future. It takes about 10 minutes to complete.
Please join in or share by clicking on ‘Link to organisation’ above!

Aortic aneurysm and dissections are serious and sometimes life-threatening conditions that can be passed down between generations. Only 20% of affected patients have a known genetic cause for their aortic dissection and/or aneurysm. The aim of our study is to try to identify new genes that contribute to the development of these diseases, with the aim of discovering better and less invasive treatment options in a timely manner, improving survival and quality of life.

We are looking for a member of the public with lived experience (personal or parent/carer) to review an application looking at treatments for invasive Group A Streptococcal infections. The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It will be available to review from 18 September and would ideally be completed within 2 weeks. If you are interested, please send details of your experience.