What’s involved?
– Share your views and experiences to support decisions throughout the project
– 12 hours of your time spaced over a two-year period, in the form of an online meeting every 3 months from summer 2026 until summer 2028
– Anything discussed in meetings will remain confidential
– If you have specific needs, I will work with you to make your involvement flexible, accessible and comfortable
– More information is provided on the attached poster
The PPI group will help refine how nutritional, genetic, and cognitive assessments are explained; shape the questions to be used in the focus groups; and identify any misunderstandings, barriers, or ethical concerns.
It will also help explore broader issues such as beliefs about nutrition, barriers to healthy eating, perceptions of genetic risk, and views on taking part in future nutrition and genetics research.
Up to 8 adult individuals with lived experience, as a patient of, or as a carer or parent of someone with, atopic dermatitis (eczema) who would be willing to review patient-facing documents online and give feedback on how clearly the information has been written and presented.
Participants will take part in one workshop, which is expected to last for approximately 2 hours and 30 mins with breaks, either online or in-person in West London. During the workshop, we will ask participants to:
• Share their views on an intervention that will help improve patients to take oral capecitabine treatment as recommended
• Participants will either help us narrow down intervention options from a shortlist or develop the chosen intervention in more detail
The Fatherhood Project CIC operates a permanent community hub in Luton, delivering trauma-informed mentoring and emotional regulation for 60+ young men (14–25) facing school exclusion or violence. Backed by deep community trust and robust data tracking, we want to partner with a university or NHS Trust to co-produce evidence-based research. We offer unparalleled fieldwork access and lived-experience insights to co-apply for joint health, social care, or community engagement funding.
Have you, or someone you care for, experienced a stroke over one year ago.
Researchers would like to hear from local people who have experienced a stroke, or carers of someone who has experienced a stroke over one year ago. We are interested in speaking with people who have noticed any changes or ongoing effects affecting the use of their arm, hand, shoulder, or upper body following a stroke.
People living with spine conditions and those who undergo spine surgery can experience pain, changes in independence, and emotional challenges such as anxiety, worry or low mood. While research has explored clinical outcomes, less is known about how people personally experience the surgical journey. This study aims to understand patients’ psychological and emotional experiences from before to after spine surgery through a one-to-one online interview, helping to inform more holistic patient care.
We’re developing research for people with asthma who still feel breathless despite medication, often linked to reduced muscular control of breathing. A new physiotherapy treatment has been created and will be compared with NHS treatment.
We invite you to a 1 hour online focus group to share feedback on the study, help improve recruitment, and identify barriers to participation. Camera and active discussion required.
Please see attachment for further details and the link to express an interest.
I am seeking volunteers with lived experience to review findings from qualitative interviews and help assess their relevance, interpretation, and practical application. This will be a small online focus group discussion lasting 60–90 minutes, with a maximum of two sessions. Participants will help shape actionable recommendations for dissemination and implementation. No payment is offered. A community of practice has also been consulted to inform the work. Feedback will be shared.
We are looking for pregnant women, or mothers with children under 1 to join a friendly Patient and Public Involvement (PPI) discussion group. We welcome people from all backgrounds, experiences and circumstances. You do not need any specialist knowledge – we are just interested in your views and experiences.
Taking part involves joining an online focus group lasting 2 hours at 11am on Thursday 2nd July. Share your views in a supportive and friendly group setting.
