We are looking for people with asthma who have had lots of breathing tests to find out why they still feel breathless. We are especially interested in people who have attended an asthma clinic or been diagnosed with Breathing Pattern Disorder (BPD).
Join an online focus group so that we can find out your experiences. Your views will help shape a future study of a 3D camera breathing assessment. To take part, please briefly tell us about the breathing tests you have had.
Are you passionate about making research and innovation truly people‑centred? The Voice Research and Innovation Group meets on the third Thursday of every month to help bring lived public and patient experience to health, care and community research and innovations. Adults from across the UK are welcome to apply through our website. Meetings are paid and meet online or in person in Newcastle Upon Tyne. Please find more information and apply through our website.
We’re recruiting parents and carers of children who’ve stayed in paediatric intensive care to join our advisory group for LION-CUB, an NIHR-funded Imperial College London study exploring how ethnicity, poverty, language and access to healthcare affect children’s critical care. No prior experience needed, your experience as a parent is what matters.
We especially welcome parents from diverse ethnic and language backgrounds, including those who haven’t felt research was for them before.
This workshop is for people living with long-term health conditions (patient or carer), who can share their experiences from before and after having had ECO measures installed (ECO stands for Energy Company Obligation and is a government-mandated scheme for households in energy poverty). Venue near King’s X Station, London, 1 Oct 2026, Registration/Coffee 9.30-10am. Workshop 10-12noon. £55 shopping voucher.
Do you live in Wales and have you had a possible chest infection (e.g. a cough) or a COPD flare up in the last 12 months? We\\\'d love to hear about your experience. Join a small workshop to help improve patietn information about a finger-prick blood test that can support decisions about antibiotics. No research experience is needed. Workshops last around 2 hours, are online or in person, and participants will be reimbursed.
Public Involvement (PI), while widely used in clinical research, remains uncommon in preclinical research, where animals are often used to learn more about biology and disease.
This short survey (est. 10 mins) seeks to understand the expectations and experiences of members of the UK public on PI in animal research.
Survey link: https://app.onlinesurveys.jisc.ac.uk/s/oxford/public-involvement-in-neuroscience-research-public-survey
The NIHR PECD service are looking for up to 8 adult individuals with direct experience of MND (motor neurone disease) to participate in this opportunity, who would be willing to review patient-facing documents online and give feedback on how clearly the information has been written and presented.
A surgical treatment for Alzheimers disease is currently used in parts of Asia but is not yet available in the UK. We want to hear from patients, carers, and clinicians: would this be of interest here?
It is a minimally invasive surgery connecting the brain's natural waste drainage vessels to nearby veins in the neck, to help clear away the harmful protein build-up linked to Alzheimers. Preliminary data has been promising, though further studies is required. Please complete this survey
We are looking for 3 people with lived experience of Fragile X Syndrome to review the lay summary of the research project. We would like to get feedback on the proposed approach to the trial and better understand the potential impact for patients and families.
PPI reviewers will be sent a lay summary (up to 1300 words) which has been completed by the research team. Reviewers will be asked to complete a written review form to share their feedback on key areas of the project.
Researchers at the University of Birmingham are developing an app to support recovery after concussion.
We are seeking people who are EITHER:
– Serving military/veterans/others able to contribute a military perspective on concussion
OR
– Someone with experience of a shorter, uncomplicated recovery from concussion
Participation involves a single 90-minute online meeting. To take part, contact Andrew Stevens: a.stevens@bham.ac.uk. Please include a brief summary of your relevant experience.
