Skip to main content

PIE Volunteer Opportunity for a Parkinson’s Study

I am designing an observational study exploring what information is discussed during Parkinson’s consultations and whether patients and carers feel their concerns were fully addressed. You will help develop the interview guide and participant information sheet, ensuring that participants feel safe and comfortable sharing their experiences and identifying topics they feel should have been discussed in more detail.

What influences general practitioners’ perceptions of their duty of care to the partners of people with cancer?

I’m currently looking to establish a small Patient and Public Involvement (PPI) group of 4–6 people affected by cancer to support my PhD research.

I’m particularly keen to hear from patients, carers, partners or family members with lived experience of cancer who would be interested in helping to shape the research, helping to ensure that the research is meaningful.

No previous research or PPI experience is required, I am simply looking for perspectives.

The Birmingham Concussion Home Intervention Programme

Researchers at the University of Birmingham are developing an app to support recovery after concussion in sport. We are seeking people with experience of grassroots or youth sport to help shape the app, including players, parents/carers and coaches. Experience of concussion is helpful but not essential. Participation involves a single 90-minute online meeting. To take part, contact Andrew Stevens: a.stevens@bham.ac.uk. Please include a brief summary of your relevant experience.

Seeking Advice from Patient Experts to Help Shape Myopic Research

We are searching for myopic children, and their parents, to serve as patient experts who can help to shape health economics research into the burden of the disease.

The project aims to investigate the economic burdens of paediatric myopia. We want patient collaborators to help this work stay representative of their lived experiences.

We are looking for myopic children, under the age of 18, and their parents to volunteer for a 2 hour online session and share their experiences.

Share your experiences of Myeloma

We are looking for people who live in the Northwest and would be happy to talk about their experiences of myeloma. We will ask you to talk to up to 2 separate groups of students for 50 minutes each time. There will be up to 12 students and 1 facilitator in each group.

This event will take place at the University of Manchester on Thursday 24th September 2026 10.30pm-1pm

For more information, please see the attached advert.
To apply please click on link in attached advert

Deadline 6th Sept

A physical activity intervention for people starting obesity medications (GLP-1 agonists)

We are putting in a funding application to develop a physical activity intervention for people who are taking GLP-1 agonists (the obesity injections). We would like the views of the public on this, and are also looking to recruit a PPI lead if we get funding. We firstly would like views on our lay abstract and plan.

Incidental findings found through genetic testing

Join a new online patient and public involvement group to help design research on incidental findings found through genetic testing. An incidental finding is something found during a medical test that is unrelated to the original reason the test was requested. I’m seeking people with experience of medical genetic testing, incidental findings, and people with no prior experience of either. The group will meet at least twice. Please see the attached flyer for more information.

Have your say on Radiotherapy Treatment for Liver Cancer

Researchers at The Christie NHS Foundation Trust are looking to speak with people who have experience of primary liver cancer (ideally hepatocellular carcinoma, often called HCC), either as a patient or a carer.

The research is exploring ways to identify healthy liver tissue so that radiotherapy treatment can be planned more accurately.

The session will take place in the centre of Manchester.