The NIHR PECD service are looking for up to 8 adult individuals with direct experience of migraines to participate in this opportunity, who would be willing to review patient-facing documents online and give feedback on how clearly the information has been written and presented.
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Co-production workshop for people affected by viruses spread by ticks or mosquitos
We are inviting people with lived experience (including caring for others) of these infections to join an online workshop.
The group discussion will last 90 mins and focus on:
• The longer-term impacts of arbovirus infections
• The impact on individuals and their carers
The discussions in this workshop will help us create a new tool or questionnaire that will be received by people taking part in the ARBO-UK study in the future.
Your experience can help shape digital support for starting medicines
We are looking for adults, carers, healthcare professionals in the UK
• Adults who have started a long-term medicine
• Carers for adults who have started a long-term medicine
• Healthcare professionals involved in initiating or supporting new prescriptions
No previous public involvement or research experience is required.
1 to 1.5 hours online discussion in early-mid April
Help shape a new app for managing chronic fatigue
FatigueSense is a digital health project led at Newcastle University and funded by the NIHR Newcastle Biomedical Research Centre. We are developing a mobile app that uses AI and wearable data to predict and monitor fatigue. We are inviting people who experience chronic fatigue related to any health condition to help shape the design of the app. Your lived experience will help ensure the tool works for real people managing fatigue in everyday life.
Trial Steering Committee – Yorquit Study
The YorQuit Study is looking at how we can better support people to stop smoking when they attend for lung cancer screeining appointments, helping reduce smoking-related disease. We are looking for someone from Yorkshire who can bring a real-world perspective and help ensure the study reflects the experiences and needs of people who smoke or have smoked.
You do not need research experience – just an interest in improving health and helping shape research that could benefit others.
Lifestyle medicine interventions for people with heart failure
We are looking for people with heart failure, or their carers, to help shape a research study. The study aims to develop a lifestyle programme to improve quality of life in primary care. You will be asked to share your experiences, ideas, and feedback. This will help us design a programme that works for real people. No research experience is needed. Your input will make a real difference to future care.
Young people’s experiences of colds, flus, coughs and sore throats
We’re looking for young people (18–24) to share their experiences of managing coughs, colds, and other respiratory infections, and when they decide to seek help. Your insights will help improve support and information for young people. The interview lasts 30–45 minutes (online, phone, or in person), and you will receive a £30 voucher as a thank-you.
Personality disorders and The Mental Health Act project steering group
The project is focusing on The Mental Health Act and experiences of compulsory treatment and detention in personality disorders. The group would aim to meet online around twice a year. We are looking to recruit individuals with caring duties or personal experience of a diagnosis of a personality disorder and detention or treatment under The Mental Health Act
GP-TEST-PRO study PPIE group
We are looking for people age 40 and over who care about improving the diagnosis of prostate cancer to join a friendly patient & public involvement group about the future of testing for prostate cancer.
You will receive £55 per meeting for taking part.
When?
Two PPIE group meetings per year until 2031, each lasting two hours
Where?
Mix of online and in-person meetings
What?
Read a few of the study documents and join in conversations in the meetings.
Have your say on sexual health after radiotherapy for gynaecology cancer
Radiotherapy is an effective treatment for gynaecological cancers, but many women
experience long-term effects that can impact sexual health.
We are looking for people with experience of gynaecological cancers who received radiotherapy as part of their treatment, who are happy to share their views on sexual health, sexual function and vaginal side effects after treatment, and willing to listen to others experiences.
This session will take place at the Christie Hospital in Manchester.
