We want to use health-related data to understand the relationship between cardiovascular diseases and dementia better. Your insight will shape our project, so the findings are relevant and helpful for people living with dementia and heart conditions.
You will help us design the project and interpret the findings. We will also ask for your support with disseminating findings and communication with the general public and policy makers.
Uncategorized
Have you used a Same Day Emergency Care service? Share your experience to shape research!
Same Day Emergency Care (SDEC) is an NHS service that allows patients who need urgent medical assessment and treatment to be seen, treated and discharged on the same day, without an overnight hospital stay. These units are sometimes known as Acute Medical Units, Surgical Assessment Units, or Same Day Emergency Units.
We are building a Patient and Public Involvement (PPI) group made up of people with lived experience of using Same Day Emergency Care services.
Neurodiversity and Empathy in Healthcare
We are inviting neurodivergent individuals in healthcare or other professional client-facing roles to a public involvement group. Little research has explored how neurodivergent healthcare professionals experience and express empathy. We are developing a funding application to better understand neurodivergent clinician empathy and wellbeing. Across two online meetings, members will help shape our research to reflect neurodivergent experiences and inform accessibility.
Digital Prehabilitation programme PPIE – Group Workshop
Group Workshop
– Interactive session with platform demonstrations
– Up to 2 Hours
– In Person
– Location: Ballymena, BT43 6H
– Date: 30th June, 12pm – 2pm
PreActiv is a digital prehabilitation platform helping to prepare and optimise
people's health through exercise, nutrition and mental readiness before their surgery
to improve their outcomes, reduce their risk of complications and get them home
quicker.
National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial around IgA Nephropathy
The NIHR PECD service are looking for up to 8 adult individuals with direct experience of IgA Nephropathy to participate in this opportunity, who would be willing to review patient-facing documents online and give feedback on how clearly the information has been written and presented.
Empathy in Maternity Care
NHS maternity services support mothers and babies before, during, and after birth, but over half are rated as not safe enough. Safety is worse for Black, Asian, and lower-income mothers, and existing solutions haven’t worked. We are preparing an NIHR programme grant application to test a system-level empathy intervention and explore what an “empathic system” in maternity services looks like. We are forming a PPI group to support the development of this application.
Atlas for Health: An invitation to help researchers answer questions to better understand generational health
UCL’s Atlas for Health seeks families (e.g., grandparent/parent/youth) with lived experience of diseases managed in the NHS to co-author a scientific paper mapping diseases across generations.
• Commitment: 1 hour/week online for around 4-6 weeks, starting immediately.
• The Role: Use health data to answer a question about your family\’s health that can be answered using data, and potentially join a media campaign.
A 90 minute online meeting to improve trial design and analysis for people living with multiple long-term conditions.
We’re inviting people living with multiple long-term conditions, and their carers, to join a virtual meeting on 28 July (13:00–14:30). We’ll discuss findings from a study on improving how clinical trials are designed, run and analysed for multiple long-term conditions, and check they reflect real-life experience. Up to 30 places available. Please say why you’re interested and what perspective you bring.
Seeking neurodivergent adults’ perspectives on Cystic Fibrosis care
What’s involved?
– Share your views and experiences to support decisions throughout the project
– 12 hours of your time spaced over a two-year period, in the form of an online meeting every 3 months from summer 2026 until summer 2028
– Anything discussed in meetings will remain confidential
– If you have specific needs, I will work with you to make your involvement flexible, accessible and comfortable
– More information is provided on the attached poster
Perceptions of nutritional, genetic, and cognitive assessments in mild cognitive impairment Alzheimer’s disease
The PPI group will help refine how nutritional, genetic, and cognitive assessments are explained; shape the questions to be used in the focus groups; and identify any misunderstandings, barriers, or ethical concerns.
It will also help explore broader issues such as beliefs about nutrition, barriers to healthy eating, perceptions of genetic risk, and views on taking part in future nutrition and genetics research.
