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Lived Experience Advisory Group for a coastal and rural mental health study in Cornwall

PLEASE NOTE: This role is open to people who currently live within the following areas of Cornwall:

  • Falmouth/Penryn and surrounding areas
  • North Cornwall Coast (Polzeath, Wadebridge, Tintagel, Boscastle, Port Isaac) and surrounding areas’

The Coastal and Rural Mental Health Realist Study (CARMHRS) is a NIHR funded study hosted by the University of Plymouth and partner Universities.

The purpose of the study is to establish the problems people in rural and coastal areas face when trying to access
mental health support. It will also look at how services are provided.

We aim to do this by:

• Talking to community members, patients and service providers to understand what is being done to support mental health locally.

• Understanding if existing mental health services are acceptable and accessible to the coastal and rural communities they serve.

• Understanding why one service or strategy might work well in one place / for one person but might not work very well in another place / for a different person.

• Using what we learn to co-create a tailorable guide to improving coastal and rural mental health.
The Lived Experience Advisory Group (LEAG):

We are looking for people with personal experience of living with (or caring for someone living with) metal health problems and living in coastal or rural areas of Cornwall to join our LEAG. The LEAG will meet regularly to:
1) Make sure we are asking the right questions to the right people.
2) Give feedback on our research materials and findings.
3) Share what we learn along the way.
4) Help us to understand what we are learning means locally.

You can get involved in multiple* ways:
• Joining regular group meetings
• Joining regular 1-to-1 meetings
• Providing feedback by email, phone or voice note etc.

*This will depend on your preferences and the number of spaces available.
All contributions and contributors are valued.


Who are you looking for? (experience/perspectives/skills)Do you currently live within a coastal and/or rural community in Cornwall?

Do you have lived experience of accessing and/or attempting to access mental health services? (A formal mental health diagnosis is not a requirement)
and/or
Do you have experience of caring for someone with mental health needs?

Would you like to make a difference to Mental Health services within your local community?

We are looking for people with personal experience of living with (or caring for someone living with) metal health problems and living in coastal or rural areas of Cornwall.

Participant must be willing to share and use their lived experience in order to guide the research.

Ideally available to attend monthly meetings and/or able to provide feedback until June 2027.

No prior research experience is required as all relevant training will be provided  
How will people be involved? (activities/tasks)This is primarily an ‘advisory’ role. LEAG participants will work with other members of their group, and the wider research team, to help improve Mental Health services in our Local communities. 

LEAG members will be required to:

1) Attend monthly meetings of the LEAG

2) Share your personal experiences of accessing mental health services  

3) Use your lived experience to make sure we are asking the right questions to the right people

4) Use your lived experience to make recommendations for positive change and improve services

5) Work with peers and colleagues to develop and design the research and data collection aspects of the project

6) Ensure the person, carer and family experience is embedded in all improvement work

7) Assist with sense-checking the data 

8) Assist in sharing the research locally

9) Using what we learn to co-create a tailorable guide to improving coastal and rural mental health.

OPTIONAL: Take part in ‘Community of practice’ to support the wider research team with analysing the data collected, ensuring the research is understandable to a wide audience and exploring ways to share the research findings
How will the involvement contribute / impact?LEAG involvement will contribute to guiding the research team to make sure we are asking the right questions to the right people and make recommendations for positive change and improve services.

Contribute to the co-creation of a tailorable guide to improving coastal and rural mental health.
Time commitmentApproximately 12 x 2-hour workshops (or preferred equivalent) between March 2026 and June 2027 
When will the involvement start?March/April 2026
Who else will be involved? (team / other public members)The local research team (2-3 researchers) and other lived experience advisory group members (5 max)
What can applicants expect after applying?Informal chat; recruitment documents, support meeting, meet the team, activity session to start at the end of March 

An online survey to explore the lived experiences of individuals with foot drop 

Do you live with foot drop? We want to hear from you.

If you are 18 or older and living with foot drop, we invite you to take part in our 20‑minute online survey.

Your insights will help us design solutions that reflect person‑centred care and improve everyday life for people living with foot drop.

To take part, please click on the link below:


https://app.onlinesurveys.jisc.ac.uk/s/qmu/an-online-survey-to-explore-the-lived-experiences-of-individu-1 

Patient/Carer Advisory Group – Study to Prevent Blood Clots in Mental Health Hospitals

MARVEL-MH – Reducing the risk of hospital-associated blood clots in people admitted to mental health hospitals

When people are admitted to hospital with mental illness, they may be at risk of developing blood clots (also known as venous thromboembolism). We want to better understand this risk and explore how it can be reduced.

We are forming a Patient and Carer Advisory Group to help shape this research.

The group will meet four times over 18 months via MS Teams (each meeting will last one hour, with around one hour of preparation).

This group is essential to our study. We want to ensure that the research reflects what matters most to patients and carers.

The advisory group will help with:

– Planning visits to mental health hospitals

– Designing interview questions for healthcare professionals, patients and carers

– Reviewing study materials and findings before they are shared with patients, conferences and scientific journals.


Who we are looking for:

We are looking for individuals living with mental health conditions who have experience of being admitted to a mental health hospital or have cared for someone who has been admitted to hospital. It would be really good to meet individuals who have also experienced having a blood clot, but this is not essential. We welcome people from all backgrounds and communities.

How you would be involved:

The advisory group will meet on four occasions over the 18-month study via MS Teams, and be reimbursed for all
meetings.

The group will support the:
– Planning of visits to mental health hospitals
– Designing interview topic guides for health care professionals and patients and carers
– Review any study dissemination material for patients, conferences and scientific journals.

How will your involvement contribute:

Having patient/carer involvement will mean we can plan and deliver our research to capture what matters the most for patients and to really understand how best to communicate our findings.

Time commitment:

Approximately 8 hours over 18 months (4 x 1-hour meetings plus 1 hour preparation per meeting).

What to expect after applying:

After applying, the lead investigator for the study will contact the applicant for an informal chat to see whether they would like to go ahead.