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STOPCAP2 Patient and Public Involvement (PPI) Group

We are looking for new members for the PPI Group (Patient and Public Involvement Group) for the STOPCAP2 research programme. STOPCAP2 is being led by researchers at University College London (UCL) and it aims to improve understanding of metastatic prostate cancer and its treatments.
The role of the PPI Group is to work with STOPCAP2 researchers to make sure that their plans and results are inclusive of patient voices and meet their needs and the research aims.

Patient Representative for Trial Management Group

PPI Representative for a Trial Management Group (TMG) for a research study. The study aims to improve the identification of the diseased heart areas responsible for abnormal, fast heart rhythm called ventricular tachycardia (VT), using a novel method prior to patients undergoing catheter ablation. People who have undergone catheter ablation or know someone who has, may find this very interesting. Providing their feedback during TMG meetings, every 2-3 months on MS teams.

Improving patient care by finding the most effective way to freeze and store stem cells.

We are looking for 5 Frozen Stem Cell Transplant Recipients to attend an event at the NHSBT Barnsley Centre on Tuesday 02/09/25, Start time: 12:00 (midday), finish time has not been confirmed yet.

Changing how we store and freeze stem cells may help to improve the outcome for patients receiving stem cell transplants by reducing time spent in hospital waiting for engraftment, or reducing the toxic side effects of the cryopreservative currently in use.

If you are interested please email us.

Improving Outcomes for Children and young People in Care

We are looking for a member of the public with lived experience of foster care to review an application looking at ways to improve outcomes for children in care. The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It is available to review and would ideally be completed within 2 weeks. If you are interested, please send details of your experience.

PPI co-applicant on research grant wanted

Are you interested in being part of a research project as a Patient and Public Involvement co-applicant? We are looking for someone with lived experience of colonoscopy to be a part of the ‘I-SPACE’ project team. This is a decarbonisation project looking to evaluate the environmental impact and cost/resource use of the large bowel testing pathway, particularly colonoscopy and capsule colonoscopy (pill camera test).

Recovery following a hip fracture 

We want to speak to older adults who broke their hip following a fall, or their carers. We are particularly interested in speaking to those who live outside of London.

We are interested in hearing what happened after older adults went home from hospital. We want to hear about any care you had in another hospital, at a clinic, or at home, to help with recovery. This care might have included physiotherapy, occupational therapy, or other healthcare professionals.

Development and psychometric testing of a single-item scale to measure therapeutic empathy: Patient-reported version

We need patients to help develop a single-item scale to measure empathy in healthcare. This will involve taking part in one cognitive interview (where you are given a questionnaire and asked to talk through the mental process involved in answering each question). The interview can take place face-to-face at the University of Leicester or online via Microsoft Teams. It will last no longer than 30 minutes. With your permission, we will audio-record your interview. It will then be anonymised.

Paid volunteers to join research study working group

The BEACON Study looks at the causes of chronic obstructive pulmonary disease (COPD). We are looking for the following groups to join our Working Group:
– Cigarette smokers aged 18-45 years old
– People with COPD or their carers

By joining, you will meet researchers from the study to give feedback on our research. All meetings will be online.

You will be paid £30/hour for attending a meeting.

Sign up above by clicking on ‘Link to organisation’ or copy and paste the following in a web browser: https://imperial.eu.qualtrics.com/jfe/form/SV_0qvRGmmjsYDCgJw

Shaping the Future of Non-Hormonal Long-Acting Reversible Contraception (LARC)

We are looking for women to take part in Patient and Public Involvement (PPI) sessions to help develop a new, non-hormonal, long-acting reversible contraceptive device for women.

Your insights will help us design a device that meets the needs of diverse women and ensures a patient-centered approach. We are looking for women with diverse perspectives, including sexually active women of childbearing age, women with long term health conditions such as cancer or cardiovascular diseases.