We are inviting people living with an autoimmune condition to join a workshop to explore the links between their diagnosis journey and mental health. Your views will help shape future research.
We welcome people of any age, living with autoimmune conditions affecting the joints, digestive system, or hormones, including those awaiting diagnosis.
We are particularly keen to hear from women, people from Black or South Asian backgrounds, and people also living with depression or anxiety.
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Community Appointment Days (CADs) for People with a Musculoskeletal (MSK) Condition
CADs offer an appointment to help people with their musculoskeletal condition, and other health and social care needs.
We are looking to recruit a Patient Advisory Group (PAG) of eight members. The PAG will meet remotely every two weeks during protocol development, every two months during data collection, and then monthly to inform interpretation and preparation of materials for dissemination.
If interested, please write an expression of interest and we will meet to discuss the opportunity.
Help researchers make the air in hospitals safer
During the Covid 19 pandemic, researchers at University College London (UCL) analysed movement of particles in the air in hospitals. They did this to work out how to reduce the risk of transmission of diseases like Covid 19. Beyond the pandemic, the work has relevance to reducing the spread of any disease carried by the air, such as seasonal flu or scarlet fever.
CONNECT: Studying joined up hospital care for people with learning disabilities.
People with severe learning disabilities often face poorer health and complex surgical care involving multiple teams and repeated anaesthesia, increasing risks and stress. We want to study surgical care experiences. We would like to speak to people with learning disabilities/autism and their families for advice on designing this study to make sure it meets their needs and helps them to be involved.
Public engagement opportunity for research project looking at reduction of ultra processed food consumption (GOLDFINCH)
GOLDFINCH is a study on ultra processed foods (UPFs) that is being led by researchers at Imperial College. We are currently recruiting members of the public to the project’s Public Reference Group (PRG). The PRG will help researchers to understand the issues that matter to communities most affected by unhealthy diets. We are looking for members of the public over the age of 18 with an interest in healthy eating and/or food environments who understand the difficulties of choosing healthier foods.
Help shape research on periodontitis, biomarkers and personalised care
We are looking for patients and public contributors to help shape a research fellowship on periodontitis (gum disease). The study aims to improve diagnosis and prediction of future disease burden using clinical, biomarker and patient-reported information. Contributors will help review study documents, improve patient-facing materials, comment on acceptability and relevance, and advise on dissemination.
Help shape research to improve children’s anaesthetic experiences
We are inviting children, young people, and parents or carers to take part in an online discussion to help design a research study. The study will explore whether changes to hospital anaesthetic rooms (e.g. lighting, sounds, decorations) can reduce anxiety in children having surgery. You will be asked what may help children feel calmer and what researchers should measure. The 60 minute session will take place on Microsoft Teams. A device with internet, camera and microphone is required.
National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial in Migraine
The NIHR PECD service are looking for up to 8 adult individuals with direct experience of migraines to participate in this opportunity, who would be willing to review patient-facing documents online and give feedback on how clearly the information has been written and presented.
Co-production workshop for people affected by viruses spread by ticks or mosquitos
We are inviting people with lived experience (including caring for others) of these infections to join an online workshop.
The group discussion will last 90 mins and focus on:
• The longer-term impacts of arbovirus infections
• The impact on individuals and their carers
The discussions in this workshop will help us create a new tool or questionnaire that will be received by people taking part in the ARBO-UK study in the future.
Your experience can help shape digital support for starting medicines
We are looking for adults, carers, healthcare professionals in the UK
• Adults who have started a long-term medicine
• Carers for adults who have started a long-term medicine
• Healthcare professionals involved in initiating or supporting new prescriptions
No previous public involvement or research experience is required.
1 to 1.5 hours online discussion in early-mid April
