FatigueSense is a digital health project led at Newcastle University and funded by the NIHR Newcastle Biomedical Research Centre. We are developing a mobile app that uses AI and wearable data to predict and monitor fatigue. We are inviting people who experience chronic fatigue related to any health condition to help shape the design of the app. Your lived experience will help ensure the tool works for real people managing fatigue in everyday life.

The YorQuit Study is looking at how we can better support people to stop smoking when they attend for lung cancer screeining appointments, helping reduce smoking-related disease. We are looking for someone from Yorkshire who can bring a real-world perspective and help ensure the study reflects the experiences and needs of people who smoke or have smoked.

You do not need research experience – just an interest in improving health and helping shape research that could benefit others.

We are looking for people with heart failure, or their carers, to help shape a research study. The study aims to develop a lifestyle programme to improve quality of life in primary care. You will be asked to share your experiences, ideas, and feedback. This will help us design a programme that works for real people. No research experience is needed. Your input will make a real difference to future care.

We’re looking for young people (18–24) to share their experiences of managing coughs, colds, and other respiratory infections, and when they decide to seek help. Your insights will help improve support and information for young people. The interview lasts 30–45 minutes (online, phone, or in person), and you will receive a £30 voucher as a thank-you.

The project is focusing on The Mental Health Act and experiences of compulsory treatment and detention in personality disorders. The group would aim to meet online around twice a year. We are looking to recruit individuals with caring duties or personal experience of a diagnosis of a personality disorder and detention or treatment under The Mental Health Act

We are looking for people age 40 and over who care about improving the diagnosis of prostate cancer to join a friendly patient & public involvement group about the future of testing for prostate cancer.

You will receive £55 per meeting for taking part.

When?
Two PPIE group meetings per year until 2031, each lasting two hours

Where?
Mix of online and in-person meetings

What?
Read a few of the study documents and join in conversations in the meetings.

Radiotherapy is an effective treatment for gynaecological cancers, but many women
experience long-term effects that can impact sexual health.

We are looking for people with experience of gynaecological cancers who received radiotherapy as part of their treatment, who are happy to share their views on sexual health, sexual function and vaginal side effects after treatment, and willing to listen to others experiences.

This session will take place at the Christie Hospital in Manchester.

We are looking for members of the public to help shape a research project exploring diabetes screening in patients with severe gum disease. Contributors will review patient information materials, advise on recruitment and follow-up processes, and support dissemination of findings. No research experience is required. Your input will help ensure the study is relevant, accessible and beneficial for patients and the community.

We are developing a study on pleural empyema (a serious lung infection), to find out the best way to treat children affected by this condition.

We would like to speak with parents and carers of children treated in hospital for pleural empyema, as well as with children and young people themselves if they wish, to understand which parts of their hospital care mattered most.

Your experiences and opinions will help us design research that truly reflects what is important to families.

Every year, thousands of clinical trials are run to find better treatments. TMRP and TMRN are conducting a priority-setting exercise to improve how we plan, conduct, analyse and disseminate clinical trials. As a member of the public or someone active in patient and public involvement, we would like to hear what you think our research priorities should be. The survey takes just 15 minutes, but your input will directly influence and shape future clinical trials.