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Patient Advisory Group member to Lymphoma Benefits and Risks Team at Oxford Population Health

Our group aims to improve the lives of people living with and beyond lymphoma by providing clearer information on treatment benefits and risks.
We are seeking people (>18 years) with experience of lymphoma who live in the UK. Members will join online meetings three times a year, where our team will share updates followed by open discussion.
Members may also be invited to review or contribute to publications, funding applications and other materials if they feel comfortable.

Are you pregnant or recently delivered your baby (within last 3 months)?

We want to hear from pregnant women and women who have recently delivered (in the last 3 months) for the planning of a clinical trial, which aims to test heparin injections to an oral blood thinning medication after delivery.

We want to hear from women not at risk of blood clots.

A 1-hour focus group on TEAMS is planned, where we will discuss with you:
• the proposed trial planned,
• what improvements can be made,
• what, if any concerns you may have in taking part.

Improving the adoption of clinical guidelines for the treatment of gum disease in primary dental care

This study explores the factors that make it easier or harder to adopt new periodontal (gum disease) guidelines in NHS primary care dental services. It will help to understand how to improve the process. The study will also co-develop a strategy to address these factors, improving the delivery of high-quality treatment for gum disease. Improving guideline uptake will benefit patients with gum disease.

Pleural empyema (lung infection) in children – PPIE

We are developing a research study on pleural empyema (a serious lung infection), and we’d love to hear your views!

We’re especially keen to speak with parents or carers of children or young people who have been treated for pleural empyema in hospital.

Your experiences and opinions can help us design research that truly reflects what matters to families.

You will be reimbursed for your time in line with NIHR guidance.

Interested? Contact us by email: parentsvoicesforresearch@yahoo.com

Co-production of a Nurse-led, Psychosocial Intervention for Young Adults with an Acquired Brain Injury

The YARNS Transitions project aims to develop a nurse-led psychosocial intervention to support young adults following a brain injury. For this intervention to be relevant and meaningful for young adults, we are inviting people who have experienced an acquired brain injury at a young age, as well as their carers, living and receiving care across the United Kingdom to take part in our online workshops.

Help Shape Research on Pharmacy & Preconception Care

Pharmacy4Parents2B is a PhD project exploring how pharmacies can support people before pregnancy (preconception care). We are creating a Patient and Public Involvement (PPI) panel and are looking for UK-based participants aged 18+. Anyone with an interest in pregnancy planning, preconception health, or improving healthcare is welcome.
Conversations will be held online and no research experience is needed.

Knee Replacements – Have Your Say: PPIE OPPORTUNITY

We would like to gain insight to patients’ perspectives on the analysis of the qualitative study. We would like to know your thoughts and opinions on the themes that were established during the study.
Secondly, we are looking to conduct a survey to increase the scope of opinion from clinicians’ perspective of the knee replacement pathway. We believe that having your opinions on what could be implemented into the survey would be of great benefit to the overall aims of the project

Improving outcomes after major surgery for cancer

Some patients having cancer operations are at high risk of developing heart complications afterwards, including ‘Myocardial Injury after Non-Cardiac Surgery’ (MINS) which is like a mild heart attack. This study will explore if we can predict MINS in cancer patients by using routine pre-op fitness tests alongside blood tests for heart muscle damage.
Identifying those at risk of MINS may allow preventive measures to be taken before and/or after surgery, and thereby improve cancer patient outcomes.

Nutrition after a hip fracture

In the Kadoorie Oxford Trauma and Emergency Care Research Group at the University of Oxford, we are developing a research project that will investigate how best to support people to eat well after a hip fracture.
We would like to speak to people who have had a hip fracture or who have cared for a friend/relative after a hip fracture. We would like to understand your experience, and your views of a support tool such as workbook that provides information about healthy eating while recovering.