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CSO Public Engagement Group

Our Public Engagement Group (PEG) provides a lay perspective on CSO’s work, helping to make sure that the public view is considered in policy and funding decisions.
The primary activity for PEG members is reviewing the final reports of our funded fellowships and grants to ensure they are understandable to a general audience.
Some members sit on various Committees to offer their perspective and help ensure that the outcomes of discussions are transparent and fair.

Share your thoughts on lung cancer detection technologies based on artificial intelligence (AI) for the NHS

We invite people with lived experience of lung cancer or benign nodules, as well as carers, to join our public involvement group. Whether you’re a smoker, ex-smoker, or non-smoker, your input is welcome.
Participants will take part in two online workshops (2 hours each):
First workshop: 9 October 2025, 10am.
Second workshop: January 2026 (date to be confirmed).
Your insights will help shape research and development, and ensure it reflects the needs of those affected.

Opportunity to review for the MRC-NIHR Efficacy and Mechanism Evaluation Programme

The MRC-NIHR Efficacy and Mechanism Evaluation Programme is looking for a public reviewer to comment on an application currently under consideration.
We are seeking an individual with lived experience (either as an individual with experience of the condition/s or a carer of someone with the condition/s) related to a molar pregnancy mole and / or gestational trophoblastic neoplasia (GTN).

Dementia Research Opportunity

This project is about people living with dementia who take multiple medications.

Through this study, we hope to find out about your experiences of taking multiple medications and having medication reviews with a healthcare professional.

Researchers in our team are working on a computer programme that could help healthcare professionals do medication reviews. We want to speak with you to make sure the computer programme works well when used with people living with dementia.

Join the PALOH-UK Parent Advisory Group today!

A new genetic test has now been implemented across fourteen NHS hospitals to predict which babies are at risk of hearing loss due to side effects of antibiotics.

PALOH-UK is a research study that is evaluating this genetic test and will help decide how the genetic test is used across the UK.

Join our Parent Advisory Group to shape this research study, influence decision-making and make a difference that will shape clinical care in NICU in the future.

Share your experiences of an inherited cancer

We are seeking a member of the public who
• lives in the North West:
• would be happy to talk to/answer students’ questions about their experiences of an inherited cancer

This event will take place:
• At the University of Manchester campus on Oxford Road.
• On Thursday 25th September 2025 1.45pm-4pm

For more details and a link to the application form please see the attached advert.

National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial in Hives (also known as Chronic Spontaneous Urticaria).

Up to 8 adult individuals with lived experience, as a patient or carer, of Hives (also known as Chronic Spontaneous Urticaria) who would be willing to take part in an online group discussion to help shape a commercial trial.

Share your experiences of a solid organ transplant e.g. liver, kidney, heart

We are seeking a member of the public who
• lives in the North West:
• would be happy to talk to/answer students’ questions about their experiences of an organ transplant

This event will take place:
• At the University of Manchester campus on Oxford Road.
• On Thursday 25th September 2025 1.45pm-4pm

For more details and a link to the application form please see the attached advert.

#StaffedWards

We are researching how staff impact patient safety on mental health wards. We would like to invite you to join our Lived Experience Advisory Group. Your insights can shape this study and make wards safer for future patients.
The Lived Experience Advisory Group (LEAG) will have 8-10 members and will meet will 8 times throughout the project (ending December 2027). You will use your experience with mental health inpatient services to advise and consult on all aspects of the study.

Functional ability and help-seeking behaviours in lung cancer

This project will aim to understand how people with lung cancer in Scotland experience changes in their functionality and what factors influence how they make decisions to seek or forego help for ill health. We will explore how socioeconomic hardship and/or geographical remoteness might affect these decisions. We will work to empower participants themselves to engage in self-monitoring and decision-making that will help them take positive action to look after their health.