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RCOT Research & Innovation Fund Panel member with lived experience

We’re looking for two people with lived experience of occupational therapy, or who have cared for someone who accessed occupational therapy, to join our Panel. Every year, our Research & Innovation Fund awards grants for occupational therapy research, with recipients decided by the Panel. As part of the group, you’d need to be able to:

• attend one virtual meeting a year for three years
• do some reading beforehand.

We will support you in the role.

Help train the next generation of biomedical engineers

As part of their course, students here at UCL undertake projects to design engineering solutions. To improve this aspect of their work and help them garner a better understanding of the real-world challenges people face, we are seeking to reinvigorate this course by involving people who use these technologies.
This will involve in person meeting to help them understand your needs and feedback on their designs and ideas. Please express interest through this form https://forms.cloud.microsoft/e/21TdmXuDGN

National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial relating to heart disease or high cholesterol

Up to 8 adult individuals with direct experience of heart disease or high cholesterol to participate in this opportunity, who would be willing to attend an insight session online via Zoom

PiLot Study To Assess The AdhereNcE In School Age Children With Asthma (PLANES)

We are exploring whether reminder letters from schools can help reduce asthma-related absences. This study will also assess whether this approach is practical and acceptable within schools.

We invite children aged 5-16 with asthma who use preventer medication, and their parents or carers, to join a small PPI group. You will meet once or twice a year to share feedback on study materials and design.

To sign up: https://forms.gle/LHSpXu98DdVqGANHA

Implementing support for paid staff working for voluntary sector organisations: Actionresearch study

Our funded study is exploring how charities can better support their paid staff. For example, people employed as wellbeing coaches, mental health workers and social prescribers. This is because if staff are well-supported, this ensures better quality services for people accessing help. We have a service user Experts by Experience group. The group meets online every 6 months with occasional tasks between meetings. We are looking for about 4 additional people to join the group. We are especially looking for young people (under 24s), older people and men. This is to fill gaps we currently have on our group. People ideally need to have experience of receiving help from charities. If you are interested, please contact the research lead (Alexis Foster- alexis.foster@sheffield.ac.uk) and we will send a short expression of Interest form that needs completing to apply to join the group.

ICU Survivors – ELPIS Study Stakeholder event

This online stakeholder event will bring together ICU clinicians, ICU survivors, and family members to share and discuss a supportive care model developed from family interviews following withholding or withdrawal of life-sustaining treatments in adult ICUs. Feedback from participants will be used to refine the model and co-produce practical recommendations to improve family support and end-of-life decision-making in ICU.

Serious mental illness among minoritised ethnic children and adolescents in England with eczema

We are inviting parents/carers of children with eczema to join two online workshops. You will talk about your experiences of supporting your child’s eczema and mental health and what has or hasn’t helped. Through group discussions and simple activities, you will help guide future research and create clearer information for families and services.

National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to give your feedback on a clinical trial for patients with moderate to severe asthma.

Up to 8 adult individuals with lived experience, as a patient or carer, of asthma who would be willing to read through draft documents that have been prepared for people interested in taking part in the study and giving feedback on how clearly the information has been written and presented.

Blood test communication in primary care: help to design and share our research

The UNITE study aims to understand and improve how blood tests are discussed in primary care (GP).

We are looking for people to join a PPIE panel. The panel will meet 3 times a year over the project duration (3-4 years) to advise on the research design and sharing the research findings.

Panel members will be involved in designing resources for primary care staff and patients to help improve communication about blood tests.

The 3rd year of the project involves in-person workshops in London.

If you are interested, please complete the form linked above.