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Queen's University Belfast invite PPIE members

Researchers from Queen's University Belfast invite individuals living in the UK and with personal experience of palliative and end-of-life care to join a PPIE group to develop a research funding application. Join 3 online meetings until mid December (dates and times will be arranged to suit you). In this role, your tasks will include commenting on research ideas, reviewing information for participants and draft documents and, ensuring that the research design reflects personal experience.

Patients and carers needed to help improve patient safety when ambulance crews do not take patients to hospital

I am seeking patients and carers (anything from a paid carer to someone who occasionally looks after someone else). They need to have experience of an ambulance crew coming out to them, or the person they look after, in the last year, and the person not being taken to the Emergency Department. I am hoping to understand more about how the process happens in clinical practice to make improvements to the ambulance service and safety for patients. The interviews are informal.

Help us learn how people access healthcare for Otitis Media

We are evaluators of Pharmacy First, a service that enables patients to be referred to a community pharmacy for a minor illness instead of seeing a GP. As a part of our research, we are trying to understand how people access care for their child when they are not feeling well.
Involvement consists of attending up to four remote, one-to-one meetings (each 45 minutes long). You will receive £25 per meeting.
During those meetings, you may be asked about your child’s symptoms and your experiences.

UK participants needed to help plan a clinical study to treat persistent pain after inguinal hernia surgery​​

Have you experienced pain after an inguinal (groin) hernia repair, that went on longer than you expected?

We are designing a study to test a treatment, and want to hear your views.

First, by testing some of the questionnaires we might use in your own time. And then in a small group discussion with other patients to discuss the design and patient experience.

The session will take place online using MS Teams in the next few weeks at 1830.

Please get in touch for any more information!

Understanding Shin Wounds: Can Early Care Prevent Leg Ulcers

We are seeking patients, carers, and members of the public to help shape an important research study exploring how shin injuries (pretibial injuries) heal, and whether early treatment with compression therapy can prevent complications such as leg ulcers.

Your involvement will help ensure the research is relevant, respectful, and focused on what matters most to people affected by these injuries. You do not need any research experience—just a willingness to share your views.

CHECKMED study Patient and Carer Advisory Group

Our research will explore what happens when a second person is asked to check the dispensing, preparation or giving of a medicine in hospital. We are looking at how second-person checking “works” and how it should be used.

We are forming a Patient and Carer Advisory Group to help ensure that the perspectives of patients and carers are at the heart of our research.

We are looking for 5 people who have received medication in hospital in the last 5 years, or have cared for someone who has.

Parents of Children with Dysphagia – PAID Interview Opportunity via MS Teams

30 minute interview opportunity via MS Teams video call. All parents of children with dysphagia aged 0-17 welcome. Interviews will be about your lived experiences with your child’s swallowing difficulties, including their journey to being diagnosed with dysphagia. Help shape research questions and the study design of future research on paediatric dysphagia.

PiLot Study To Assess The AdhereNcE In School Age Children With Asthma (PLANES)

We are exploring whether reminder letters from schools can help reduce asthma-related absences. This study will also assess whether this approach is practical and acceptable within schools.

We invite children aged 5-16 with asthma who use preventer medication, and their parents or carers, to join a small PPI group. You will meet once or twice a year to share feedback on study materials and design.

To sign up: https://forms.gle/LHSpXu98DdVqGANHA