Up to 8 adult individuals with direct experience of Haemophilia A or B, to participate in this opportunity, who would be willing to review patient-facing documents online

We are looking for support and the lived experience of people affected by cardiac arrest.

You may be:
1) Someone who has had a cardiac arrest,
2) The loved one of someone that has had a cardiac arrest and survived,
3) The loved one of someone that has had a cardiac arrest and tragically died.

We are looking for individuals that can help us design and deliver research in cardiac arrest- a variety of opportunities are available that we can tailor in line with your time and interest.

We are looking for new members to join our patient & public group to work with us making sure that public views on how we run our research are heard and acted on. You do not need to have a long-term condition, or be a regular user of health or care services. Being interested in infections, the microbes that cause them and antimicrobial resistance is enough! We are particularly interested in talking to young people, young families, and people who might think that science research is not for them.

We are looking for people with lived experience of depression or dementia (directly or as a carer), who are over 18 years of age, and live in the UK, to share their views on potential barriers and solutions to the use of brain stimulation technologies in routine clinical care.

It involves one 2-hour focus group (in-person at the Oxford Centre for Integrative Neuroimaging – JR hospital).

The next focus group is planned for: ** Wednesday 19th November (11am-1pm) **

We’re seeking a Patient and Public Involvement (PPI) representative to join a UCL-based study within the NIHR Policy Research Unit on Cancer Awareness, Screening and Early Diagnosis. The paired PPI rep will give ongoing feedback on study materials and at key stages. Payment follows NIHR PPI rates. See the attached longer advert for further details.

As part of the development of a research idea and research proposal, I am seeking feedback from patients and/or their carers with lived experience of poor bone health. This may have presented as:
– A ‘low-energy fracture’, where you sustained a break in a bone from standing or a low height.
– A diagnosis of ‘osteopenia’, where your bone density is lower than it should be for your age, but not osteoporosis
– A diagnosis of ‘osteoporosis’, where your bone density is poor

We’re looking for parents/carers of infants/children who’ve had reflux in the last 2 years to help the OTTER Study. This study will test whether omeprazole helps treat reflux in babies. You’d review study documents and give feedback once a year (plus occasional requests).
Your experience will help shape the study design and materials in a way that makes sense for families, and ensure that parent/carer needs are heard from the start. If you can help with, we’d love to hear from you!

Up to 8 adult individuals with direct experience of gastro-oesophageal cancer to participate in this opportunity, who would be willing to attend an insight session online via Zoom on Wednesday 19th November, afternoon or evening.

People from Poland, Bulgaria, Slovakia, Lithuania, Latvia, Romania, Slovenia, Estonia, Hungary, or Czechia who live in the UK are invited to share their experiences of looking after themselves when they have coughs, colds, or chest infections, and how they decide when to seek medical help.

We are forming a public advisory group of four to six members to help guide this study. Members will review materials, share their views, and help ensure the research is relevant and useful to patients and the public.

We’d love your feedback on a new research study looking at the experiences of people living with HIV from ethnic minority backgrounds and any barriers or challenges in taking part in HIV research. Your thoughts will help us make research more inclusive and improve future care. We just need about an hour of your time to review the study design and share your feedback.