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Heatwaves and mental health

We know that people living with severe mental health conditions may face extra challenges during very hot weather. This project aims to understand why so services and communities can respond better.

I am forming a small advisory group to help the research team guide the project and be involved in making practical guides and recommendations.

If you are interested, please express interest through link in document attached.

Have you or someone you have cared for experienced sepsis?

We are a research team based at Imperial College London looking for a small group of public members to help us with an important research project on antimicrobial resistance (when antibiotics stop working as well because of overuse or misuse) focussing on sepsis. We would especially like to hear from people from minority ethnic backgrounds who are under represented in our group so far.

The Roles of Fears of Compassion and Loneliness in Depression in Older Adults with Experiences of Childhood Trauma – A Mediation Study.

We are looking for UK residents aged 60+ who read English to complete a survey for a Doctoral Thesis.
We are exploring the links between childhood trauma, loneliness, being afraid of giving or receiving compassion and depression in older adults. Understanding these connections more clearly will help find better ways to provide support. No lived experience is needed to participate.
To participate, copy and paste this link: https://edinburgh.eu.qualtrics.com/jfe/form/SV_e51cgtMuGxAfRn8

Prehabilitation for spinal surgery

We are looking to hear from people from across the country to design a prehabilitation program to support people who are waiting to have surgery on their neck/back for age-related conditions. This may limit how far people can walk because of pain, numbness or balance problems. We want to hear from you about how we can deliver it in practice in a way that keeps it accessible and useful to you. If you have had spinal surgery or awaiting spinal surgery please get in touch.

Maximising years lived without dementia and other late-life conditions

I am recruiting a 6 person steering group to guide a 5-year NIHR-funded research programme on maximising dementia-free years and minimising the time spent with disability. The research will include developing new methods, analysing data, understanding patient and carer experience of dementia, and communicating findings to policy/the public. The group will meet 6 monthly in-person/virtually/hybrid to be determined by the group.

Improve Communication Tools for People With Aphasia

Inclusion criteria:
Adults (18+) with long-term expressive (Broca’s) aphasia, with unimpaired language comprehension and cognition, use English as their main language and have had aphasia for more than 6 months.

Participation involves:
• Providing some language samples from before aphasia (optional formats include written or recorded).
• Taking part in one online session (approximately 45–60 minutes via Microsoft Teams).
• Receiving a £10 Amazon voucher as compensation for your time.

Help shape research about feeding infants on Nasal High Flow breathing support

We are looking for parents/carers from all backgrounds across the UK to help shape research about feeding babies receiving Nasal High Flow breathing support in neonatal units. Join our Patient Public Involvement and Engagement (PPIE) group to share your experiences and views, helping ensure the research reflects what matters most to families.

Activities include:
– Online discussions (around four a year)
– Reviewing research materials
– Helping share results with families and professionals

Improving recovery from concussion

Many people have long term symptoms after concussion. A research group is exploring what these are and how they can be managed. Photo biomodulation is a new technique that may improve recovery. people are needed to talk about how a trial might work to test this new technique. If you are interested in joining a 1 hour online focus group please contact james@brainhrc.org with some information about your experience of concussion

Help improve research on using bedside ultrasound to check breathing tubes in newborn babies.

We are looking for parents or carers whose baby received care on a neonatal unit to help shape an NHS research study. We would value your views on study information, consent, recruitment, the funding application, and how results should be shared. One parent may also join the application as a public co-applicant. No research experience is needed. Meetings can be online or in person, and reasonable expenses will be reimbursed.