We’re looking for parents/carers of infants/children who’ve had reflux in the last 2 years to help the OTTER Study. This study will test whether omeprazole helps treat reflux in babies. You’d review study documents and give feedback once a year (plus occasional requests).
Your experience will help shape the study design and materials in a way that makes sense for families, and ensure that parent/carer needs are heard from the start. If you can help with, we’d love to hear from you!
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National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial in gastro-oesophageal cancer
Up to 8 adult individuals with direct experience of gastro-oesophageal cancer to participate in this opportunity, who would be willing to attend an insight session online via Zoom on Wednesday 19th November, afternoon or evening.
Eastern European Voices: Tell Us How You Manage When You Have a Cold or Chest Infection
People from Poland, Bulgaria, Slovakia, Lithuania, Latvia, Romania, Slovenia, Estonia, Hungary, or Czechia who live in the UK are invited to share their experiences of looking after themselves when they have coughs, colds, or chest infections, and how they decide when to seek medical help.
We are forming a public advisory group of four to six members to help guide this study. Members will review materials, share their views, and help ensure the research is relevant and useful to patients and the public.
The VOICE study
We’d love your feedback on a new research study looking at the experiences of people living with HIV from ethnic minority backgrounds and any barriers or challenges in taking part in HIV research. Your thoughts will help us make research more inclusive and improve future care. We just need about an hour of your time to review the study design and share your feedback.
Queen's University Belfast invite PPIE members
Researchers from Queen's University Belfast invite individuals living in the UK and with personal experience of palliative and end-of-life care to join a PPIE group to develop a research funding application. Join 3 online meetings until mid December (dates and times will be arranged to suit you). In this role, your tasks will include commenting on research ideas, reviewing information for participants and draft documents and, ensuring that the research design reflects personal experience.
National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial in Urothelial Cancer
Up to 8 adult individuals with lived experience, as a patient or carer, of Urothelial Cancer who would be willing to review patient-facing documents online.
Patients and carers needed to help improve patient safety when ambulance crews do not take patients to hospital
I am seeking patients and carers (anything from a paid carer to someone who occasionally looks after someone else). They need to have experience of an ambulance crew coming out to them, or the person they look after, in the last year, and the person not being taken to the Emergency Department. I am hoping to understand more about how the process happens in clinical practice to make improvements to the ambulance service and safety for patients. The interviews are informal.
National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial in Kidney Cancer
Up to 4-8 adult individuals with direct lived experience of Kidney Cancer to participate in this opportunity, who would be willing to review patient-facing documents online.
Help us learn how people access healthcare for Otitis Media
We are evaluators of Pharmacy First, a service that enables patients to be referred to a community pharmacy for a minor illness instead of seeing a GP. As a part of our research, we are trying to understand how people access care for their child when they are not feeling well.
Involvement consists of attending up to four remote, one-to-one meetings (each 45 minutes long). You will receive £25 per meeting.
During those meetings, you may be asked about your child’s symptoms and your experiences.
UK participants needed to help plan a clinical study to treat persistent pain after inguinal hernia surgery
Have you experienced pain after an inguinal (groin) hernia repair, that went on longer than you expected?
We are designing a study to test a treatment, and want to hear your views.
First, by testing some of the questionnaires we might use in your own time. And then in a small group discussion with other patients to discuss the design and patient experience.
The session will take place online using MS Teams in the next few weeks at 1830.
Please get in touch for any more information!
