You can take part if you are a parent or carer of a child who is currently seeking, or has sought within the last 5 years, an assessment for a neurodevelopmental condition. Please note: due to the nature of the activity, access to a laptop or PC will be required.
You will receive a link to the online tool and survey between March and April.
If you are interested, please complete this form: https://forms.office.com/e/E604G8BurT
The Tommy’s National Centre for Miscarriage Research is forming a new Miscarriage PPI Group and would like to welcome people with lived experience of miscarriage, as well as their partners and supporters to join. No previous PPI experience is needed. Join friendly meetings (online or in person), discuss research project ideas, share your insights, and help shape research that truly reflects families’ needs. Honorarium payments offered. Apply by email or expression of interest form.
We are looking for Greater Manchester residents with an interest in Medical Education to help train UK doctors at The University of Manchester’s Doubleday Centre. https://sites.manchester.ac.uk/doubledaycentre/
Up to 8 adult individuals with direct experience of open heart surgery to participate in this opportunity, who would be willing to review patient-facing documents online
Our research study is looking to better understand the factors and links between mental health conditions and cancer diagnosis in children and young people and how this may change over time.
We\'ve got some initial results and we\'d like to explore this further with you over a 2 hour discussion session over Zoom.
Sign up today if you\'ve:
• been diagnosed with any type of cancer between ages 0-24 (it’s absolutely fine if you’re 25 or older now) AND
• lived experience of a mental health condition
What is Urgent Community Response (UCR)?: UCR is an NHS service that provides rapid care to people in their homes within 2 hours. It helps people get assessed and supported at home instead of going to hospital. It does not include virtual wards or routine home care visits.
We would like to hear from people who: Have used the Urgent Community Response service, either as a patient or as a carer and live in North Central London or North East London
This will be a 2-hour workshop
UCR is an NHS service that provides rapid care to people in their homes within 2 hours. It helps people get assessed and supported at home instead of going to hospital. It does not include virtual wards or routine home care visits.
We would like to hear from people who: Have used the Urgent Community Response service, either as a patient or as a carer and live in North Central London or North East London
This will be a 2-hour workshop
Sign-up form: https://forms.office.com/e/wypibZAWqH
Do you live with foot drop? We want to hear from you.
If you are 18 or older and living with foot drop, we invite you to take part in our 20‑minute online survey.
Your insights will help us design solutions that reflect person‑centred care and improve everyday life for people living with foot drop.
To take part, please click on the link below:
MARVEL-MH – Reducing the risk of hospital-associated blood clots in people admitted to mental health hospitals
When people are admitted to hospital with mental illness, they may be at risk of developing blood clots (also known as venous thromboembolism). We want to better understand this risk and explore how it can be reduced.
We are forming a Patient and Carer Advisory Group to help shape this research.
The group will meet four times over 18 months via MS Teams (each meeting will last one hour, with around one hour of preparation).
This group is essential to our study. We want to ensure that the research reflects what matters most to patients and carers.
The advisory group will help with:
– Planning visits to mental health hospitals
– Designing interview questions for healthcare professionals, patients and carers
– Reviewing study materials and findings before they are shared with patients, conferences and scientific journals.
Who we are looking for:
We are looking for individuals living with mental health conditions who have experience of being admitted to a mental health hospital or have cared for someone who has been admitted to hospital. It would be really good to meet individuals who have also experienced having a blood clot, but this is not essential. We welcome people from all backgrounds and communities.
How you would be involved:
The advisory group will meet on four occasions over the 18-month study via MS Teams, and be reimbursed for all
meetings.
The group will support the:
– Planning of visits to mental health hospitals
– Designing interview topic guides for health care professionals and patients and carers
– Review any study dissemination material for patients, conferences and scientific journals.
How will your involvement contribute:
Having patient/carer involvement will mean we can plan and deliver our research to capture what matters the most for patients and to really understand how best to communicate our findings.
Time commitment:
Approximately 8 hours over 18 months (4 x 1-hour meetings plus 1 hour preparation per meeting).
What to expect after applying:
After applying, the lead investigator for the study will contact the applicant for an informal chat to see whether they would like to go ahead.
There is clear national guidance on preventing, detecting, assessing, and managing delirium. However it is difficult for hospices to put this into practice because delirium care is complex. We have designed a way for hospices to overcome these difficulties and follow delirium guidelines better. We are testing if approach this improves delirium care and reduces delirium in hospices. Our trial steering committee oversees the project and includes academics, clinicians and public members.
