Stroke survivors and carers from across England, including a range of ages, ethnicities, and
individuals with communication and visual impairment who have received remote psychological therapy and staff who have delivered this psychological therapy to stroke survivors to get involved, to ensure that the right research questions are being asked for the outcome sought.

People who have cirrhosis of the liver are at higher risk of developing liver cancer. I would like to assemble a group with lived experience of chronic liver disease, or cirrhosis or liver cancer or liver cancer surveillance. This can be direct experience as a patient or indirect experience (e.g. caring for someone with these issues). By drawing on your knowledge, I would like to explore how data science research could help improve early liver cancer detection.

Each year, thousands of chest drains are inserted, often as life-saving procedures. However, complications can still occur, even with correct placement, and may be under-reported.

We’ve created a short, anonymous survey for patients, or relatives to share experiences of chest drain complications. Your input will help us understand and prioritise these issues.

Join Our Focus Group Study!
We’re seeking NHS service users to share views on wearable tech for monitoring vital signs. Your input will help shape future research and guide NHS innovation.
Eligibility: 18+ and past NHS patient.
Format: Online focus group (date TBC).
Interested? Email: sian.shaw@aru.ac.uk or Isobel.McMillan@aru.ac.uk

We’re developing a guideline to help researchers share trial results clearly with patients and the public. This online survey asks what kinds of information you think should be shared.

It takes 15–20 minutes per round.

Participants must be 18 or older. We welcome input from all backgrounds, with priority for people from minority groups.

Take part here:
https://app.onlinesurveys.jisc.ac.uk/s/oxford/test-3-a-delphi-survey-to-identify-a-core-set-of-items-for-sh-2

Researchers at University College London are inviting you to share your thoughts on genetic testing and the chance of developing type 2 diabetes in the future. This short, anonymous survey takes just 5 minutes and will help researchers understand how to better support women’s health after pregnancy.

https://qualtrics.ucl.ac.uk/jfe/form/SV_e41T2NU1IEYmQxo

We would like some input (focus group) to provide feedback on our prototype design from a PPIE perspective, helping ensure our work is relevant, accessible, and meets real-world needs. Their insights will guide our development, improve communication, and support better outcomes for everyone involved.

Inner speech is defined as the voice is our head. It plays a role in several cognitive processes such as memory and attention. Most neurotypical adults can think in words and say those words out loud. In contrast, stroke survivors who have aphasia often experience that the words they think or intend to say (i.e., their inner speech) and the words they can say out loud, do not match. In this project, we will study the relationship between inner speech, memory, and attention.

Have you had back surgery to help with pain in your leg due to narrowing in your spine?

Was your back surgery within the last 12 months?

Can you help us?

We want to learn from your experience preparing for and undergoing surgery for lumbar spinal stenosis. We plan to develop a programme for people waiting for surgery to increase their recovery afterwards.

If you would like to know more, use the link:
https://forms.office.com/e/H57h1uMnpZ

or, email Lianne Wood at L.Wood2@exeter.ac.uk

Have you or a loved one attended Cognitive Stimulation Therapy (CST) sessions?

Or have you been involved in delivering CST in a volunteering role?

If so, we’d love to hear from you!

We are looking for people with lived/volunteering experience to join us in co-developing a study to understand how CST work, so that we can find ways to enhance its benefits.