Have you or a loved one attended Cognitive Stimulation Therapy (CST) sessions?
Or have you been involved in delivering CST in a volunteering role?
If so, we’d love to hear from you!
We are looking for people with lived/volunteering experience to join us in co-developing a study to understand how CST work, so that we can find ways to enhance its benefits.
We would like to develop and automate a pipeline to monitor changes in bone strength in high-fracture-risk advanced prostate cancer patients, comparing different types of treatments. We are looking for public members/health professionals to advise on the proposal idea, review lay summary, share their views on the use of Computed Tomography scans in this manner, advise how it might be best to disseminate our findings.
Semi-structured patient interviews (either face-to-face, by telephone, or through call-based software, such as MS Teams or Zoom). To explore the views and perspectives of people from minority ethnic communities diagnosed with COPD or asthma, regarding the barriers and facilitators of adherence to medication. To make recommendations based on the identified barriers of adherence to medication to support people from minority ethnic communities.
What is the problem?
Healthcare professionals (HCPs) use digital tools for patient consultations more and more. This includes phone, video, or chat messaging. These work well for many patients and are important for future-proofing the NHS. But they can make it harder for HCPs to express empathy compared with face-to-face appointments. We will find out from patients and HCPs how empathy can and should be expressed in digital consultations to inform an online training package for HCPs.
We are looking for people to fill out a brief survey on their experiences of mental health symptoms in Lewy body disease. Lewy body diseases can include Parkinson’s, Parkinson’s with dementia or dementia with Lewy bodies. Mental health symptoms such as depression, anxiety or apathy can be quite common in Lewy body diseases but their cause is not well understood. This survey aims to collect expert opinions and experiences from people affected by Lewy body disease to help design future research.
The new blood-biomarker challenge for dementia is set out to gather the evidence needed for future implementation of these tests in the NHS. My PhD aim is to make sure these tests are validated in diverse ethnic groups.
I am particularly welcoming individuals who self-identify as coming from South Asian or Black ethnic communities to join my steering group and/or working group. There will be 2 meetings per year (every 6 months) for the duration of my PhD (3 years). The 1st meeting in June.
We have 3-4 meetings per year, lasting 1-2 hours each. These meetings can be completed in-person or virtually, to fit in around your existing commitments/schedule. The purpose of the meetings is to:
– discuss our wider research strategy, upcoming opportunities, individual studies based on current patient interests/priorities
– review proposed individual study methodology and wider dissemination strategy
– provide feedback/letter of support for upcoming grant applications and press releases
I’m Zoe, my PhD research is The Development of a Toolkit to Help Parents/Carers Manage Feeding Problems in Autistic Children.
My 6-person patient and public involvement (PPI) advisory group will help to make sure all materials are relevant, respectful, and inclusive. More info here: https://sway.office.com/ZJW9f3Mw1pHLZCFo
My 9-person participatory research group will help with data analysis, dissemination, and other aspects of the research. More info here: https://sway.cloud.microsoft/AKBZsRmwDbCcMKdx
