This study looks at how individuals of different generations and families use antibiotics for coughs, colds, and chest infections within South Asian communities. We will work with service users and clinicians to understand beliefs, experiences, and everyday decision-making around antibiotics. Together, we will adapt existing NHS antibiotic guidance so that it better reflects cultural values and family roles, helping people manage infections safely.
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Improving the quality of care for people with gout
We are inviting people with gout to take part in a focus group with our team at King’s College London.
We would like to hear your views on what good gout care means to you, what gets in the way of good care, and what could help make care better for others with gout in the UK.
The meeting will be hosted in-person at King’s College London, but virtual participation options will also be available for those who are unable to attend in person. No previous research experience is needed.
Using simulation to find out the best way to communicate to pregnant women about vaccinations
This project seeks to understand and improve vaccine uptake in pregnancy by developing an AI based “Virtual Birmingham” simulation to explore how women access and share information. Insights will guide testing of interventions in a Birmingham trial. The work includes engagement with pregnant women, building the simulation, designing and running the trial, and evaluating results. if funded, a PPI group will advise throughout.
RCOT Research & Innovation Fund Panel member with lived experience
We’re looking for two people with lived experience of occupational therapy, or who have cared for someone who accessed occupational therapy, to join our Panel. Every year, our Research & Innovation Fund awards grants for occupational therapy research, with recipients decided by the Panel. As part of the group, you’d need to be able to:
• attend one virtual meeting a year for three years
• do some reading beforehand.
We will support you in the role.
RCOT Research & Innovation Fund Panel member with lived experience
We’re looking for two people with lived experience of occupational therapy, or who have cared for someone who accessed occupational therapy, to join our Panel. Every year, our Research & Innovation Fund awards grants for occupational therapy research, with recipients decided by the Panel. As part of the group, you’d need to be able to:
• attend one virtual meeting a year for three years
• do some reading beforehand.
We will support you in the role.
Help train the next generation of biomedical engineers
As part of their course, students here at UCL undertake projects to design engineering solutions. To improve this aspect of their work and help them garner a better understanding of the real-world challenges people face, we are seeking to reinvigorate this course by involving people who use these technologies.
This will involve in person meeting to help them understand your needs and feedback on their designs and ideas. Please express interest through this form https://forms.cloud.microsoft/e/21TdmXuDGN
National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial relating to heart disease or high cholesterol
Up to 8 adult individuals with direct experience of heart disease or high cholesterol to participate in this opportunity, who would be willing to attend an insight session online via Zoom
PiLot Study To Assess The AdhereNcE In School Age Children With Asthma (PLANES)
We are exploring whether reminder letters from schools can help reduce asthma-related absences. This study will also assess whether this approach is practical and acceptable within schools.
We invite children aged 5-16 with asthma who use preventer medication, and their parents or carers, to join a small PPI group. You will meet once or twice a year to share feedback on study materials and design.
To sign up: https://forms.gle/LHSpXu98DdVqGANHA
Implementing support for paid staff working for voluntary sector organisations: Actionresearch study
Our funded study is exploring how charities can better support their paid staff. For example, people employed as wellbeing coaches, mental health workers and social prescribers. This is because if staff are well-supported, this ensures better quality services for people accessing help. We have a service user Experts by Experience group. The group meets online every 6 months with occasional tasks between meetings. We are looking for about 4 additional people to join the group. We are especially looking for young people (under 24s), older people and men. This is to fill gaps we currently have on our group. People ideally need to have experience of receiving help from charities. If you are interested, please contact the research lead (Alexis Foster- alexis.foster@sheffield.ac.uk) and we will send a short expression of Interest form that needs completing to apply to join the group.
ICU Survivors – ELPIS Study Stakeholder event
This online stakeholder event will bring together ICU clinicians, ICU survivors, and family members to share and discuss a supportive care model developed from family interviews following withholding or withdrawal of life-sustaining treatments in adult ICUs. Feedback from participants will be used to refine the model and co-produce practical recommendations to improve family support and end-of-life decision-making in ICU.
