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Study on mental health access for black people in the UK

In the UK, Black people are more likely to receive mental health support only when they reach crisis point. I’m conducting interviews with Black adults to explore their experiences of accessing or not accessing GP support for their mental health. I’m looking for Black individuals aged 18 or over with experience of mental health difficulties (of any kind) to review short written materials related to the study – including a participant information sheet and a recruitment poster.

PPI Group Opportunity: Older Adults Pneumococcal Vaccination

This is a grant application for a project investigating the generational influence on vaccination. We will be interviewing older adults (65 years+) and their children (possibly grandchildren too) on their thoughts about vaccination (including pneumococcal, flu, shingles, winter COVID and RSV). We are particularly interested in hearing from those who have REFUSED any of these. In this opportunity, you will be part of a small PPI team of 3/4 people, helping guide the documents and interviews.

Risks and benefits of concomitant use of contraceptives and hormonal replacement therapy

While contraceptives and menopausal hormone therapy are commonly prescribed in women, clinical evidence on the impact of concurrent medications is lacking. This project aims to evaluate potential drug interactions between hormonal therapies and other medications and investigate the role of hormonal therapy in various clinical outcomes when used with other medications using routine clinical data.

The TAPER Study Patient and Public Involvement

The TAPER Study is seeking to appoint 6 women who are interested and eligible to join its PPIE panel. You will help us to ensure that the needs and priorities of women who use HRT are central to study decisions and that the study is designed in ways that are acceptable to women both ethically and practically. To be eligible you must have experience of stopping HRT in the last 5 years (even if you subsequently restarted)

Evaluation of Virtual Assistant for Post-Stroke Information

We’re running an online focus group to collect feedback on ASKSiD, a virtual assistant designed to provide post-stroke information. If you’re a stroke survivor (3 months–5 years post-stroke) or a caregiver, we want to hear your views. Your insights will help us improve digital stroke care tools. To take part, fill out the form at https://tinyurl.com/yn3pwmvh or email mayne@emindhealth.org.

Using Patient/Family Experience to Improve the Treatment of Older Adults Admitted to Hospital with Multiple Rib Fractures

I would like to talk to patients aged 65 and over admitted to hospital with rib fractures, or their relatives. I am designing a study to identify what the most important parts of treatment in hospital are, and want to know what patients experience. I will also ask about how you think I should carry out the study.
The chat should take about 30minutes and I will record the conversation. We can speak on the phone or using Teams. I will send a summary of the study proposal before we talk.

**Opportunity** to Shape the Future of Multiple Sclerosis Care: We Want to Hear from You!

We’re seeking people with lived MS experience to share views on remote care using smartphones and AI. for three years project, you may co-design project activities, review study materials, support recruitment, advise on study conduct, and help interpret findings. You’ll also help shape public summaries and contribute to the design and implementation of the dissemination strategy. Your input will guide development of accessible, inclusive digital tools for real-life MS monitoring.

Looking for patient voices to share thoughts on new way of delivering progesterone for miscarriage prevention

Calla Lily Clinical Care is a UK-based women’s health company developing a new way to deliver vaginal progesterone – a hormone treatment used to help prevent miscarriage.
We are looking for women who have experience using vaginal progesterone (like Cyclogest) or who might be prescribed it in the future trying to get pregnant to join our patient engagement group.

Survey and/or online small group into experiences of chronic (persistent) pain after surgery

We want to hear your views! Either by a quick, anonymous survey at:

https://forms.gle/ZKs868tGLHgxg2LQ6

And/or in a small group online discussion with other patients, using Zoom on Tuesday 10th June at 18;30-19;30. This will be recorded.

If you are interested, please contact j.m.findlay@exeter.ac.uk.

To make sure our group is representative, please let us know:

What operation you had
Whether you have tried lidocaine plasters
Your gender
Your ethnicity
The part of the country you live in

Blood Cancer UK Research Involvement Network

Have you had a diagnosis of blood cancer or been a carer for a loved one who has?

Our network is a group of committed people affected by blood cancer who review all grant applications considered for funding and work with researchers to shape and influence blood cancer research.

The network was established in 2021 to make sure people affected by blood cancer are at the very centre of all the research funding decisions we make at Blood Cancer UK. We’re recruiting new members.