We are looking for people to get involved with our research project to develop a fertility preservation decision aid for young males about to start cancer treatment.
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Help Improve Research for People Living with Multiple Long-Term Conditions (MLTCs)
There is a need for more and better research with people with MLTCs.
We want to identify the most important methodological research questions which need answering in order for researchers to conduct better clinical trials in this area.
We want to establish a PPI advisory group, aiming for 8 members including people with MLTCs and carers, to advise on different sections of our study to ensure our work remains relevant to those living with MLTCs. This research will not be about the treatments.
Help Shape the Future of Stroke Recovery – Join Our Patient Advisory Panel
We’re a research team at Queen’s University Belfast developing a new tool for post-stroke upper limb rehabilitation. We’re looking for stroke survivors (18+, 12+ weeks post-stroke) to join a Patient Advisory Panel. You’ll review study materials and share your insights over two 90-minute Zoom calls. £25/hour payment. Help shape research that matters. Interested? Get in touch!
Study on mental health access for black people in the UK
In the UK, Black people are more likely to receive mental health support only when they reach crisis point. I’m conducting interviews with Black adults to explore their experiences of accessing or not accessing GP support for their mental health. I’m looking for Black individuals aged 18 or over with experience of mental health difficulties (of any kind) to review short written materials related to the study – including a participant information sheet and a recruitment poster.
PPI Group Opportunity: Older Adults Pneumococcal Vaccination
This is a grant application for a project investigating the generational influence on vaccination. We will be interviewing older adults (65 years+) and their children (possibly grandchildren too) on their thoughts about vaccination (including pneumococcal, flu, shingles, winter COVID and RSV). We are particularly interested in hearing from those who have REFUSED any of these. In this opportunity, you will be part of a small PPI team of 3/4 people, helping guide the documents and interviews.
Risks and benefits of concomitant use of contraceptives and hormonal replacement therapy
While contraceptives and menopausal hormone therapy are commonly prescribed in women, clinical evidence on the impact of concurrent medications is lacking. This project aims to evaluate potential drug interactions between hormonal therapies and other medications and investigate the role of hormonal therapy in various clinical outcomes when used with other medications using routine clinical data.
The TAPER Study Patient and Public Involvement
The TAPER Study is seeking to appoint 6 women who are interested and eligible to join its PPIE panel. You will help us to ensure that the needs and priorities of women who use HRT are central to study decisions and that the study is designed in ways that are acceptable to women both ethically and practically. To be eligible you must have experience of stopping HRT in the last 5 years (even if you subsequently restarted)
Evaluation of Virtual Assistant for Post-Stroke Information
We’re running an online focus group to collect feedback on ASKSiD, a virtual assistant designed to provide post-stroke information. If you’re a stroke survivor (3 months–5 years post-stroke) or a caregiver, we want to hear your views. Your insights will help us improve digital stroke care tools. To take part, fill out the form at https://tinyurl.com/yn3pwmvh or email mayne@emindhealth.org.
Using Patient/Family Experience to Improve the Treatment of Older Adults Admitted to Hospital with Multiple Rib Fractures
I would like to talk to patients aged 65 and over admitted to hospital with rib fractures, or their relatives. I am designing a study to identify what the most important parts of treatment in hospital are, and want to know what patients experience. I will also ask about how you think I should carry out the study.
The chat should take about 30minutes and I will record the conversation. We can speak on the phone or using Teams. I will send a summary of the study proposal before we talk.
**Opportunity** to Shape the Future of Multiple Sclerosis Care: We Want to Hear from You!
We’re seeking people with lived MS experience to share views on remote care using smartphones and AI. for three years project, you may co-design project activities, review study materials, support recruitment, advise on study conduct, and help interpret findings. You’ll also help shape public summaries and contribute to the design and implementation of the dissemination strategy. Your input will guide development of accessible, inclusive digital tools for real-life MS monitoring.
