Calla Lily Clinical Care is a UK-based women’s health company developing a new way to deliver vaginal progesterone – a hormone treatment used to help prevent miscarriage.
We are looking for women who have experience using vaginal progesterone (like Cyclogest) or who might be prescribed it in the future trying to get pregnant to join our patient engagement group.

We want to hear your views! Either by a quick, anonymous survey at:

https://forms.gle/ZKs868tGLHgxg2LQ6

And/or in a small group online discussion with other patients, using Zoom on Tuesday 10th June at 18;30-19;30. This will be recorded.

If you are interested, please contact j.m.findlay@exeter.ac.uk.

To make sure our group is representative, please let us know:

What operation you had
Whether you have tried lidocaine plasters
Your gender
Your ethnicity
The part of the country you live in

Have you had a diagnosis of blood cancer or been a carer for a loved one who has?

Our network is a group of committed people affected by blood cancer who review all grant applications considered for funding and work with researchers to shape and influence blood cancer research.

The network was established in 2021 to make sure people affected by blood cancer are at the very centre of all the research funding decisions we make at Blood Cancer UK. We’re recruiting new members.

Virtual wards, often referred to as ‘hospital at home’, have emerged as a prominent, policy-driven innovation. Acute Respiratory Infections represent a substantial burden on NHS services. In this study, virtual wards will be evaluated as a management pathway for acute respiratory infection. This opportunity is to be involved in a Patient and Public Advisory Group to help direct the study, help design the methods and to analyse data.

Sometimes when an older person falls, they break their pelvis. A lot of the time the break can get better without surgery. We are interested in hearing about the care in hospital and in the early stages after leaving hospital. We are particularly interested in speaking with those who did not have surgery. Our aim is to better understand what works well and what could be improved to inform a developing programme of research. We will hold a one-hour workshop online for those interested.

This research is aimed at better understanding the experiences of individuals in obtaining life insurance when they have a genetic condition themselves, or when there is a genetic condition in their family. You do not need to have insurance or a genetic condition in the family to get involved.

If you would like to help us with this, please follow the link below to access the questionnaire. Further instructions will be provided within the questionnaire.

https://forms.office.com/e/BQ3y1cDuk7

Researchers at Lancaster University are working with Sue Ryder to develop research projects aimed at improving palliative care and bereavement services. We would like to speak to people with advanced incurable illnesses, family members, informal carers, and those who have experienced bereavement to an online meeting (on Microsoft Teams) to help inform the direction of our research. The meeting would take place online (provisional time: 10.30-12.00 June 19th). It would involve some pre-reading.

Stroke survivors and carers from across England, including a range of ages, ethnicities, and
individuals with communication and visual impairment who have received remote psychological therapy and staff who have delivered this psychological therapy to stroke survivors to get involved, to ensure that the right research questions are being asked for the outcome sought.

People who have cirrhosis of the liver are at higher risk of developing liver cancer. I would like to assemble a group with lived experience of chronic liver disease, or cirrhosis or liver cancer or liver cancer surveillance. This can be direct experience as a patient or indirect experience (e.g. caring for someone with these issues). By drawing on your knowledge, I would like to explore how data science research could help improve early liver cancer detection.

Each year, thousands of chest drains are inserted, often as life-saving procedures. However, complications can still occur, even with correct placement, and may be under-reported.

We’ve created a short, anonymous survey for patients, or relatives to share experiences of chest drain complications. Your input will help us understand and prioritise these issues.