We are developing a new chat-bot style tool which gives advice and signposting for families with a neurodivergent child and/or a child on the waiting list for assessment.

We’re looking for up to 10 people to join our Lived Experience Group to help shape the tool through its development phases to make sure it provides the best support for families.

The group will be running from September 2025 to April 2026 online. There will be a mix of focus groups, workshops and surveys.

We are looking for people aged 18 and over. We would like to hear from you if:

– You are living with a life-limiting illness and have experience of being cared for by a Virtual Ward or Hospital at Home Service

or

– You have experience of looking after a loved one living with a life-limiting illness who received or is receiving care from a Virtual Ward or Hospital at Home Service

Please check some of our documents, such as our survey and interview questions, then tell us your views on them.

Round 3 of our Delphi survey is now open! We’re asking patients, the public, and researchers to help us agree on the most essential information to include when sharing randomised trial results.

This is the final round – just 11 short items to rate.

Your voice can help improve how results are shared in the future. It takes about 10 minutes to complete.
Please join in or share by clicking on ‘Link to organisation’ above!

Aortic aneurysm and dissections are serious and sometimes life-threatening conditions that can be passed down between generations. Only 20% of affected patients have a known genetic cause for their aortic dissection and/or aneurysm. The aim of our study is to try to identify new genes that contribute to the development of these diseases, with the aim of discovering better and less invasive treatment options in a timely manner, improving survival and quality of life.

We are looking for a member of the public with lived experience (personal or parent/carer) to review an application looking at treatments for invasive Group A Streptococcal infections. The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It will be available to review from 18 September and would ideally be completed within 2 weeks. If you are interested, please send details of your experience.

Up to 10 adult individuals with direct experience as a parent or carer of a child with Ulcerative Colitis or Crohn’s disease, who would be willing to review patient-facing documents online

This study uses a realist approach in order to answer vital questions when developing this psychosocial intervention, namely what works, for whom, under what circumstances and why. To do this, we are hosting online workshops with young adults with ABI (aged 18-45) in order to co-develop this nurse-led intervention and ensure that it is acceptable and feasible for this population.

The Innovative Licensing and Access Pathway (ILAP) focuses on getting the most transformative new medicines to patients in the UK health system quickly.

You will:
• Read applications, judge how well the product meets the criteria and complete a form to capture your views

• Attend virtual meetings (MS Teams), take part in the discussions to contribute to decisions about which applications will enter the pathway

• Work alongside experts from the NHS, MHRA and HTAs

We are planning a feasibility study on a paint-on treatment to prevent tooth decay in prisoners.
SDF is a safe, painless liquid painted on teeth—no drilling or injections.
This feasibility study will explore how to use SDF in prisons in a fair and practical way.

We’re inviting prison staff, including oral health and healthcare workers, to a PPI session to share your views and help shape the study.

We are planning a feasibility study on a paint-on treatment to prevent tooth decay in people in custody.
SDF is a safe, painless liquid painted on teeth—no drilling or injections.
This feasibility study will explore how to use SDF in prisons in a fair and practical way.

We’re inviting people with lived experience of the justice system to join the PPI session to share your views and help shape the study.