Up to 8 adult individuals, with direct experience of Hereditary Angioedema to participate in this opportunity, who would be willing to review patient-facing documents online
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How do we achieve impactful PPIE in statistical methodology research?
Statistical methodology research looks for better ways to design studies or analyse data. PPIE in this area of research can be challenging. We need members of the public to help produce guidance.
We are looking for 6 public contributors with prior experience of being involved in:
Studies about statistical research methods OR
Studies that do not have direct patient benefit but improve the way research is conducted OR
Studies with a statistical component, including clinical trials
Patient and Public Involvement opportunity looking at medicines optimisation at care transitions for people living with dementia
We are looking for five to ten people to join a public advisory group to help us with the study.
We want people who are interested in research and have lived experience of when someone with dementia has moved between care settings e.g. from hospital to a care home. This could be based on your own experience, or that of a family member.
We want to include a mix of people with different experiences and different views. We welcome people of all ages, gender, background and areas of the country.
Smoking reduction for people with serious mental illness
We are designing and testing an intervention which will be delivered in routine mental health appointments aiming to help people with serious mental illness reduce their smoking.
To join our PPI panel you must:
> over 18
> live in the UK
> be diagnosed with a serious mental illness
> are current or former smoker/vaper
> willing to help develop our intervention with us
The research will run until 2029 and we expect there to be up to 10 hours worth of reviewing/meeting per year.
If you are interested you will be asked to complete a short survey about your experience.
Patient and Public Involvement opportunity at East Suffolk and North Essex Foundation Trust
The ‘RESTED’ project wants to better understand the factors which sleep and the body clock plays a role in relation to mental health for people between the ages 18-25. The project hopes to understand what people understand about mental health and the link to sleep; what research matters to people, and what are the thoughts on the design of this study. We are keen to hear from people who have experienced dissociation, anxiety, depression, or psychosis
STOPCAP2 Patient and Public Involvement (PPI) Group
We are looking for new members for the PPI Group (Patient and Public Involvement Group) for the STOPCAP2 research programme. STOPCAP2 is being led by researchers at University College London (UCL) and it aims to improve understanding of metastatic prostate cancer and its treatments.
The role of the PPI Group is to work with STOPCAP2 researchers to make sure that their plans and results are inclusive of patient voices and meet their needs and the research aims.
Patient Representative for Trial Management Group
PPI Representative for a Trial Management Group (TMG) for a research study. The study aims to improve the identification of the diseased heart areas responsible for abnormal, fast heart rhythm called ventricular tachycardia (VT), using a novel method prior to patients undergoing catheter ablation. People who have undergone catheter ablation or know someone who has, may find this very interesting. Providing their feedback during TMG meetings, every 2-3 months on MS teams.
Improving patient care by finding the most effective way to freeze and store stem cells.
We are looking for 5 Frozen Stem Cell Transplant Recipients to attend an event at the NHSBT Barnsley Centre on Tuesday 02/09/25, Start time: 12:00 (midday), finish time has not been confirmed yet.
Changing how we store and freeze stem cells may help to improve the outcome for patients receiving stem cell transplants by reducing time spent in hospital waiting for engraftment, or reducing the toxic side effects of the cryopreservative currently in use.
If you are interested please email us.
Improving Outcomes for Children and young People in Care
We are looking for a member of the public with lived experience of foster care to review an application looking at ways to improve outcomes for children in care. The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It is available to review and would ideally be completed within 2 weeks. If you are interested, please send details of your experience.
PPI co-applicant on research grant wanted
Are you interested in being part of a research project as a Patient and Public Involvement co-applicant? We are looking for someone with lived experience of colonoscopy to be a part of the ‘I-SPACE’ project team. This is a decarbonisation project looking to evaluate the environmental impact and cost/resource use of the large bowel testing pathway, particularly colonoscopy and capsule colonoscopy (pill camera test).
