We’re developing a guideline to help researchers share trial results clearly with patients and the public. This online survey asks what kinds of information you think should be shared.
It takes 15–20 minutes per round.
Participants must be 18 or older. We welcome input from all backgrounds, with priority for people from minority groups.
Take part here:
https://app.onlinesurveys.jisc.ac.uk/s/oxford/test-3-a-delphi-survey-to-identify-a-core-set-of-items-for-sh-2
Researchers at University College London are inviting you to share your thoughts on genetic testing and the chance of developing type 2 diabetes in the future. This short, anonymous survey takes just 5 minutes and will help researchers understand how to better support women’s health after pregnancy.
https://qualtrics.ucl.ac.uk/jfe/form/SV_e41T2NU1IEYmQxo
We would like some input (focus group) to provide feedback on our prototype design from a PPIE perspective, helping ensure our work is relevant, accessible, and meets real-world needs. Their insights will guide our development, improve communication, and support better outcomes for everyone involved.
Inner speech is defined as the voice is our head. It plays a role in several cognitive processes such as memory and attention. Most neurotypical adults can think in words and say those words out loud. In contrast, stroke survivors who have aphasia often experience that the words they think or intend to say (i.e., their inner speech) and the words they can say out loud, do not match. In this project, we will study the relationship between inner speech, memory, and attention.
Have you had back surgery to help with pain in your leg due to narrowing in your spine?
Was your back surgery within the last 12 months?
Can you help us?
We want to learn from your experience preparing for and undergoing surgery for lumbar spinal stenosis. We plan to develop a programme for people waiting for surgery to increase their recovery afterwards.
If you would like to know more, use the link:
https://forms.office.com/e/H57h1uMnpZ
or, email Lianne Wood at L.Wood2@exeter.ac.uk
Have you or a loved one attended Cognitive Stimulation Therapy (CST) sessions?
Or have you been involved in delivering CST in a volunteering role?
If so, we’d love to hear from you!
We are looking for people with lived/volunteering experience to join us in co-developing a study to understand how CST work, so that we can find ways to enhance its benefits.
We would like to develop and automate a pipeline to monitor changes in bone strength in high-fracture-risk advanced prostate cancer patients, comparing different types of treatments. We are looking for public members/health professionals to advise on the proposal idea, review lay summary, share their views on the use of Computed Tomography scans in this manner, advise how it might be best to disseminate our findings.
Semi-structured patient interviews (either face-to-face, by telephone, or through call-based software, such as MS Teams or Zoom). To explore the views and perspectives of people from minority ethnic communities diagnosed with COPD or asthma, regarding the barriers and facilitators of adherence to medication. To make recommendations based on the identified barriers of adherence to medication to support people from minority ethnic communities.
What is the problem?
Healthcare professionals (HCPs) use digital tools for patient consultations more and more. This includes phone, video, or chat messaging. These work well for many patients and are important for future-proofing the NHS. But they can make it harder for HCPs to express empathy compared with face-to-face appointments. We will find out from patients and HCPs how empathy can and should be expressed in digital consultations to inform an online training package for HCPs.
We are looking for people to fill out a brief survey on their experiences of mental health symptoms in Lewy body disease. Lewy body diseases can include Parkinson’s, Parkinson’s with dementia or dementia with Lewy bodies. Mental health symptoms such as depression, anxiety or apathy can be quite common in Lewy body diseases but their cause is not well understood. This survey aims to collect expert opinions and experiences from people affected by Lewy body disease to help design future research.
