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Diabetes research opportunity

This project is about how people living with diabetes are able to access GLP-1 agonist medicines, and how effective these medicines are.
Researchers in our group are studying how electronic health data can help improve medical guidelines, and understand how these guidelines are followed in real life.
If you take part, you will meet with us online to hear about our research, and tell us about your experiences. You will also help decide how we share our research findings with the wider public.

Health Outcomes for Pandemic Evaluation (HOPE)

After a global disaster, assessment of long-term impact is often overlooked; we need information on long-term impacts on people, health services and society as a whole. We want to develop an international toolkit to help to improve pandemic coordination and preparedness. We are looking for people who are interested in guiding this project and sharing their views on what long-term impacts are important to capture in international studies.

PPI Opportunity – Evaluation of a Chronic Pain App

A smartphone application for the self-management of chronic pain has been developed in partnership with people with lived experience of chronic pain.
Before going ahead with the study, we would like to pilot run the workshop with a group of PPI volunteers to evaluate the app that has been developed to see if users find it usable and acceptable.

Participation will involve a one hour workshop on Microsoft Teams where you will give the researcher feedback on the study methodology.

National Institute for Health and Care Research Patient Engagement in Clinical Development Service: Opportunity to shape the design of a clinical trial for a new antibody treatment

Up to 8 adult individuals with direct experience of inflammatory neuropathies OR of antibody treatment for an autoimmune condition, to participate in this opportunity, who would be willing to review patient-facing documents online

Help improve NHS dental services in England using health economics tools

This study, part of the Europe-wide PRUDENT project, explores how the public, dental professionals and NHS policy makers can use economic tools to make better decisions about NHS dental services. You would join a panel made of representatives of these groups and take part in two half day workshops in London to help decide which services should be available in NHS dentistry and which groups of people should not have to pay. We would also interview you to see how you found the experience.

Help shape the future of clinical trials

Some trials randomise individuals but deliver treatment in groups (e.g., diabetes sessions). These are common, but the best ways to design and analyse them are unclear, risking unreliable results. I am developing a research proposal to provide guidance. Your role would be to review parts of the funding application and join an online meeting to discuss and give feedback (about 3 hours total)

Using electronic health records to see how well Mounjaro (tirzepatide) works for obesity

We are looking for people living with obesity to advise us on a project proposal. Our project explores whether organisations like the National Institute for Health and Care Excellence (NICE) in the UK can use data from electronic health records to see how well treatments work. We will use Mounjaro (tirzepatide) as a case study.

We will send you a short document to read. We will run a one-hour workshop online in November.
We will present our ideas and ask for your feedback.

Person with lived experience of chronic pain

Training would be provided for this role. I am designing a collaborative intervention between pain specialists and primary care workers, to enhance a social prescribing pathway. I am looking a person to attend some or all of the following meetings;
3 x one hour meetings online
a 2 hour in person meeting to analyse data from interviews (training provided)
1 or 2, two hour co-production workshops in person

This will take place over the next 2 years but most in the next 12 months.

Patient Advisory Group member to Lymphoma Benefits and Risks Team at Oxford Population Health

Our group aims to improve the lives of people living with and beyond lymphoma by providing clearer information on treatment benefits and risks.
We are seeking people (>18 years) with experience of lymphoma who live in the UK. Members will join online meetings three times a year, where our team will share updates followed by open discussion.
Members may also be invited to review or contribute to publications, funding applications and other materials if they feel comfortable.